Latest News

10th INoPSU Scientific Conference, Glasgow, Scotland17-Jul-2018

The International Network of Paediatric Surveillance Units (INoPSU) held its 10th.. read more

9th INoPSU Scientific and Executive Committee Meeting, Vancouver, Canada14-Oct-2016

On August 16, 2016 INoPSU held its 9th Scientific and Executive Committee meeting at .. read more

BPSU 30 Year Anniversary! 05-Jun-2015

Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more

Launch of INOPSU 15 Year Report24-Aug-2013

The report "15 Years of International Research into Rare Childhood Diseases" will b.. read more


Grenier, D., Lynn, R. and Zurynski, Y., 2009. Public health impacts of the International Network of Paediatric Surveillance Units. Paediatrics & Child Health, 14(8), p.499.

Zurynski, Y.A., Frith, K., Leonard, H. and Elliott, E.J., 2008. Rare childhood diseases: how should we respond?Archives of disease in childhood. 2008 Dec;93(12):1071-4.

Grenier, D., Elliott, E.J., Zurynski, Y.A., Pereira, R.R., Preece, M., Lynn, R., von Kries, R., Zimmermann, H.P., Dickson, N.P. and Virella, D., 2007. Beyond counting cases: public health impacts of national Paediatric Surveillance Units. Archives of disease in childhood. 2007 Jun;92(6):527-33.

Elliot, EJ., Nicoll, A., Lynn, R., Marchessault, V., Hirasing, R. and Ridley, G., 2001. Rare disease surveillance: an international perspectivePaediatrics & Child Health 6, no. 5: 251-260.

Annual reports