Latest News

9th INoPSU Scientific and Executive Committee Meeting, Vancouver, Canada14-Oct-2016

On August 16, 2016 INoPSU held its 9th Scientific and Executive Committee meeting at .. read more

INoPSU Meeting Update03-Aug-2016

INoPSU symposium and business meeting papers released The final meeting agenda for our.. read more

INoPSU Business Meeting08-Apr-2016

Don’t miss - Business meeting coming up August 16th, Vancouver, Canada On August.. read more

BPSU 30 Year Anniversary! 05-Jun-2015

Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more

Rare Disease Educational Workshop14-Mar-2014

Rare Disease Educational Workshop The Australian Paediatric Surveillance Unit will hos.. read more

Rare Disease Workshop26-Aug-2013

Rare Disease Symposium.. read more

INOPSU Website24-Aug-2013

The new INOPSU website will be officially launched at the INOPSU workshop being held o.. read more

INOPSU Workshop24-Aug-2013

Workshop: International Network of Paediatric Surveillance Units: The Power of Interna.. read more

Launch of INOPSU 15 Year Report24-Aug-2013

The report "15 Years of International Research into Rare Childhood Diseases" will b.. read more

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Administration of the Network

In order to carry out the aims and direct the activities of INOPSU a secretariat was established.

The INOPSU secretariat consists of a convenor, co-convenor and liaison officer. These posts following consultation with the individual national surveillance units make decisions on the direction and development of INOPSU.

Current Chair


Yvonne Zurynski

Yvonne is the Deputy Director of the APSU and
Associate Professor Discipline of Paediatrics and
Child Health, The University of Sydney. Yvonne has
a PhD in Medicine and a special interest in rare
diseases  research and epidemiology. Yvonne
leads a number of surveillance studies and has
supported the development of new surveillance
systems. She  has been instrumental in
developing strategic national and international
collaborations. Yvonne has attracted
numerous grants and has published widely.

Past INOPSU Chairs/Convenors:

Angus Nicoll

Elizabeth Elliott 

Reudiger Von Kries

Daniel Virella 

Past Secretariat:

Richard Lynne (BPSU), Liaison Officer