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Workshop: International Network of Paediatric Surveillance Units: The Power of International Collaboration to Study Rare Diseases.
Saturday 24th August 2013
The International Network of Paediatric Surveillance Units (INOPSU) provides international data on rare childhood conditions, including rare genetic disorders; rare infections, rare injuries, rare mental health disorders and many other rare diseases of childhood.
This workshop will showcase the achievements of INOPSU over the last 15 years including the impacts of INOPSU results on clinical practice and policy. Examples include: changes in legislation for child restraints and seatbelts to keep young children safe from injury; supporting vaccination programmes including polio, rubella, and varicella; supporting a review of diagnostic criteria for early onset eating disorders and fetal alcohol syndrome; the value of long term surveillance for very rare groups of conditions such as progressive intellectual and neurological deterioration in children.
Participants will have opportunity to discuss the value of establishing a paediatric surveillance unit in their country and to hear esteemed international speakers including Odille Kremp, France; Elizabeth Elliott, Australia; Danielle Grenier, Canada; Christopher Verity, United Kingdom; Sloane Madden, Australia; Yvonne Zurynski, Australia; and Nigel Dickson, New Zealand.
Please note that the business meeting and INOPSU dinner are open to INOPSU members only by prior arrangement.