Involving the Public

• Many completed and current BPSU studies have involved support groups and been supported by them (visit the studies section of the website for further information).
  
  
• BPSU applicants are encouraged to approach relevant support or public involvement groups to inform them of the proposed study and, where possible, involve them in it.
  
  
• It is recommended that researchers produce a public information leaflet including information about the condition and the study which can be distributed to relevant groups / organisations (where appropriate).
  
  
• The phase 2 application form requests information about the proposed level and nature of public involvement.
  
  
• You may find the following resources useful when considering public involvement:
  
  Contact a Family- advice, information and support to the parents of all disabled children
  
  INVOLVE - promoting and supporting active public involvement in NHS, public health and social care research.
  
  PALS - Patient Advice and Liaison Service: providing information, advice and support to help patients, families and their carers.
  

• Please note that although the BPSU is keen to involve the public, it acknowledges that the level of involvement may vary depending upon the nature of the study.