On August 16, 2016 INoPSU held its 9th Scientific and Executive Committee meeting at .. read more
INoPSU symposium and business meeting papers released The final meeting agenda for our.. read more
Don’t miss - Business meeting coming up August 16th, Vancouver, Canada On August.. read more
Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more
Rare Disease Educational Workshop The Australian Paediatric Surveillance Unit will hos.. read more
The new INOPSU website will be officially launched at the INOPSU workshop being held o.. read more
Workshop: International Network of Paediatric Surveillance Units: The Power of Interna.. read more
The BPSU was established in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the Institute of Child Health (ICH). The BPSU has enabled paediatricians to participate in the national epidemiological surveillance of rare childhood conditions in the UK and Republic of Ireland. Through the Units national data collection doctors and researchers can map the incidence of particular disorders, evaluate care and identify trends. With over 3,300 participating paediatricians the Unit regularly achieves a response rate of over 90%.
Since its inception the BPSU has initiated over initiated over 90 studies; collected information on over 25,000 cases; published and presented over 300 papers; held several scientific symposia; developed links with parent support groups; and encouraged the development of similar speciality units within the UK and abroad.
Though the Department of Health grant came to an end in 2012 the BPSU secured funding to continue surveillance work until autumn 2015. Thanks to generous grants from Great Ormond Street Hospital Children's Charity and the UCL- Institute of Child Health, and committed support from the Public Health England, GOSH Children's Charity and the RCPCH. This funding will support the continued surveillance, the production of reports such as our researcher’s toolkit for public involvement in research and .the development of the recently introduced E-reporting system and website.