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9th INoPSU Scientific and Executive Committee Meeting, Vancouver, Canada14-Oct-2016

On August 16, 2016 INoPSU held its 9th Scientific and Executive Committee meeting at .. read more

INoPSU Meeting Update03-Aug-2016

INoPSU symposium and business meeting papers released The final meeting agenda for our.. read more

INoPSU Business Meeting08-Apr-2016

Don’t miss - Business meeting coming up August 16th, Vancouver, Canada On August.. read more

BPSU 30 Year Anniversary! 05-Jun-2015

Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more

Rare Disease Educational Workshop14-Mar-2014

Rare Disease Educational Workshop The Australian Paediatric Surveillance Unit will hos.. read more

Rare Disease Workshop26-Aug-2013

Rare Disease Symposium.. read more

INOPSU Website24-Aug-2013

The new INOPSU website will be officially launched at the INOPSU workshop being held o.. read more

INOPSU Workshop24-Aug-2013

Workshop: International Network of Paediatric Surveillance Units: The Power of Interna.. read more

Launch of INOPSU 15 Year Report24-Aug-2013

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Conditions Studied (H - Z)

A B C D E F G H I J K L M N O P Q R S T U V W X  Y Z

CONDITION

UNIT

H


Haeoglobinopathy

APSU, WPSU

Haemolytic uraemic syndrome

BPSU, CPSP, NZPSU,
APSU, ESPED, GCPSU

PPSU, SPSU

Haemophagocytic lymphohistiocytosis (HLH)

BPSU

Haemorrhagic shock encephalopathy syndrome (HSES)

BPSU, HSES

Head injury secondary to suspected child maltreatment  (abuse or neglect)

CPSP

Hemoglobinopathy I

NSCK

Hemoglobinopathy II

NSCK

Henoch-Schönlein Purpura

NSCK

Hepatitis C virus (HCV) infection 

APSU, BPSP, CPSP

Hereditary periodic fever syndrome
(FMF, HIDS, MA, TRAPS, CINCA, MWS FCAS)

ESPED

High order births (Multiple Births)

BPSU

Hirschsprung's Disease

APSU

HIV infection, AIDS and perinatal exposure to HIV

NZPSU, APSU, NSCK

Hyperbilirubinaemia/Kernicterus or need for exchange transfusion

APSU, NSCK, BPSU, CPSP, SPSU, ESPED, NZPSU

Hyperinsulinaemic hypoglycaemia

APSU

Hypernatraemia

WPSU

Hypocalcaemic seizures secondary to vitamin D deficiency

BPSU

Hypophopsphatasia

ESPED

Hypoxic-ischaemic encephalopathy

WPSU

I  

Idiopathic intracranial hypertension

BPSU

Idiopathic juvenile osteoporosis

ESPED

Idiopathic nephrotic syndrome

NZPSU

Idiopathic thrombcytopenia/thrombocytopenic purpura

NSCK, ESPED

IgG-subklase and/or antipolysacharide antistofdeficiëntie

NSCK

Immune Thrombocytopenia Purpura

IPSU

Imported tropical diseases (malaria, schistosomiasis, leishmaniasis)

ESPED

Inborn errors of metabolism

NZPSU

Infantile Salt Wasting Secondary to Urosepsis

IPSU

Inflammatory bowel disease - chronic

NSCK, NZSPU, WPSU, BPSU
Influenza - severe or associated intensive care and deaths cases among
children and adolescents
APSU, ESPED, BPSU, NSCK
Ingestion of lamp oil (intoxications)
ESPED
Inherited hypocalemic salt-losing tubulopathies/
Bartter-like syndromes
ESPED
Insufficient breastfeeding NSCK
Intersexuality and severe genital malformations ESPED
Interstitial lung disease - chronic ESPED
Intravenous fluid-related symptomatic acute hyponatremia CPSP
Intussusception ESPED, Latvia, SPSU, APSU
Intussusception in children less than 12 months of age BPSU
Invasive fungal infections in VLBW children BPSU
Invasive Haemophilus influenzae infection APSU, ESPED, BPSU, NSCK
Invasive neonatal group B streptococcal infection ESPED
Invasive Staphylococcus aureus infection ESPED
Iron-deficiency anemia in infants and young children - severe CPSP
Irregular blood group antagonism non-D, non-ABO NSCK
 J, K, L  
Juvenile dermatomyositis BPSU, ESPED
Juvenile idiopathic arthritis CPSP, WPSU
Juvenile myoclonic epilepsy WPSU
Juvenille onset recurrent respiratory papillomatosis APSU
Kawasaki disease APSU, BPSU, ESPED, NSCK, 
PPSU, SPSU, IPSU
Langerhans cell histocytosis (LCH) BPSU, CPSP
Leigh syndrome/Leigh-like syndrome ESPED
Life threatening and lethal posioning ESPED
Life threatening events and unexplained deaths in neonates
on the first day of life
ESPED
Long term parenteral nutrition BPSU
Long term ventilation WPSU
Lowe syndrome BPSU
M  
Major depressive disorder - early onset CPSP
Malaria in childhood BPSU, PPSU, NSCK
Malignant disease - newly diagnosed
WPSU
Marfan's syndrome WPSU
Measles, mumps,  rubella-meningococcal meningitis BPSU
Medium Chain Acul CoA Dehyrogenase Deficiency (MCADD) NSCK, BPSU, CPSP
Meningitis/neonatal meningitis NSCK
Methicillin-resistant Staphylococcus aureus in hospitalized children BPSU, CPSP
Missed CAH NSCK
Missed congenital hypothyroidism NSCK
Missed cystic fibrosis NSCK
Missed metabolic disease CPSP
Missed sickle cell in neonatal heel prick NSCK
Multiple sclerosis NSCK, ESPED
Munchausen by proxy syndrome APSU, BPSU
Munchausen Syndrome by proxy/Non-accidental Posioning BPSU
Mycobacteriosis - atypical ESPED
N, O  
Nacrolepsy ESPED
Necrotizing fasciitis CPSP
Neonatal abstinence syndrome WPSU
Neonatal allo-immune thrombocytopenia LPSU
Neonatal B group streptococcus sepsis APSU
Neonatal herpes simplex virus (HSV) infection APSU, CPSP, NZSPU, SPSU, BPSU
Neonatal liver failure/perinatal hemochromatosis CPSP
Neonatal meningitis BPSU, CPSP
Neonatal necrotising enterocolitis BPSU, ESPED
Neonatal oligohydramnios-sequence ESPED, WPSU
Neonatal sinus venous thrombosis ESPED
Nephrotic syndrome/steriod resistant nephrotic syndrome ESPED, NSCK
Neural tube defects CPSP, NSCK, SPSU
Neuroborreliosis NSCK
Neuromuscular disorder APSU
Non-accidental head injury WPSU
Non-CF bronchiectasis IPSU
Non Neonatal Community Acquired Invasive Staphylococcus Aureus IPSU
Non-bacterial Osteitis in childhood ESPED
Non-CAH primary adrenal insufficiency IPSU
Non-tuberculous mycobacterial infection APSU, ESPED
Nosebleeds in infants WPSU
Obesity - morbid NSCK
Obesity hypoventilation syndrome (Pickwickian syndrome) CPSP
Ondine's Curse CPSP
Opsuclonnis mycoclonus syndrome IPSU
Orbital cellulitis - IP WPSU
Organoacidopathia and fatty acid oxidation defects ESPED
Osteogenesis imperfecta CPSP
P, Q, R  
Paediatric myasthenia
CPSP
Palliative care WPSU
Pancrreeatitis (acute) WPSU
Paracetamol Overdose IPSU
Peanut allergy IPSU
Periodic fever syndromes CPSP
Persistent albuminuria in the paediatric population with type 2
diabetes mellitus
CPSP
Pertussis NSCK, NZPSU, SPSU, EPSED, APSU
Phantom tumor cerebri ESPED
Pierre Robine Sequence ESPED
Pleural empyema and complicated parapneumonic empyema in children
and adolescents < 18 years
ESPED
Pneumococcal meningitis/sepsis NZPSU, ESPED
Pneumonia - Complicated WPSU
Poliomyelitis NSCK
Postneonatal mortality in prematures <32 weeks and/or <1500g NSCK
Prada-Willi syndrome APSU, CPSP
Pregnancy in adolesence LPSU
Primary Cillary Dyskinesia IPSU
Primary immunodeficiency diseases APSU
Progressive Intellectual Cholestatsis NZPSU
Pyridoxine dependent seizures BSPU
Raised Blood Lead Levels BPSU
Renal Failure - chronic WPSU
Respiratory syncytial virus (RSV) infection in paediatric
transplant patients
CPSP
Retinopathy of prematurity LPSU, NZPSU
Rett syndrome SPSU, BPSU
Reye's syndrome BPSU, ESPED
Rota-virus gastro-enteritis, severe complications NSCK, ESPED
RSV disease requiring intubation and artificial ventilation ESPED, SPSU
S  
Scleroderma BPSU
Septo-optic dysplasia WPSU
Severe bronchiolitis requiring ICU/HDU care IPSU
Severe combined immunodeficiency CPSP, APSU
Severe complications of medication NSCK
Severe Neonatal Hypernatraemia BPSU
Severe neonatal respiratory failure that requires
additional critical care therapy
ESPED
Shaken baby syndrome ESPED, NSCK, SPSU, IPSU
Small intestine insufficiency NSCK
Smith-Lemli-Opitz syndrome CPSP
Splenectomy and hyposplenism WPSU
Staphylococcus scalded skin syndrome NSCK
Steroid-resistant nephrotic syndrome ESPED
Stroke/transient ischaemic attacks/cerebrovascular disease ESPED, IPSU, BPSU
Subacute sclerosing panencephalitis (SSPE) APSU, CPSP, BPSU
Subdural haematoma and effusion in children APSU, BPSU, WPSU, NZPSU
Sudden death in epilepsy WPSU
Sudden unexpected postnatal collapse APSU, BPSU
Surgical ligation of patent ductus arteriosus BPSU
Systemic lupus erythematosus APSU, ESPED
Systemic Neisseria-neningococcal infections ESPED
T  
Thrombosis - deep vein NSCK
Thrombosis - neonatal ESPED
Thrombosis in childhood BPSU
Thryotoxicosis BPSU
Tick-borne encephalitis ESPED, SPSU
Toxic Shock syndrome BPSU
Toxoplasma gondii- Congenital infection PPSU
Transfusion-related acute lung injury CPSP
Transient Leukaemia NSCK
Transient myeloproliferative syndrome in neonates with Down-Syndrome ESPED
Travel-related illnesses in paediatric travellers who visit friends and 
relatives abroad
CPSP
Tuberculosis/atypical tuberculosis infection BPSU, WPSU, NSCK
U, V, W, X, Y, Z  
Unexpected sudden infant death and severe apparent life-threatening
events in the early postnatal period
CPSP
Urea cycle disorder SPSU
Varicella - congenital/neonatal I APSU, BPSU, ESPED, NSCK
Varicella - severe complications APSU, BPSU, ESPED, NSCK, 
PPSU, NZPSU, SPSU, IPSU
Visual impairment/Blindness - Severe BPSU
Vitamin D deficiency (rickets) APSU, CPSP, WPSU, IPSU, NZPSU, 
Vitamin K deficiency bleeding - (Haemorrhagic disease of the newborn) APSU, BSPU, ESPED, CPSP
NZPSU, SPSU, NSCK
 X-lined anhyroditic ectodermal dysplasia BPSU
LEGEND
APSU Australian Paediatric Surveillance Unit
BPSU British Paediatric Surveillance Unit
CPSP Canadian Paediatric Surveillance Program
GCPSU Greece/Cyprus Paediatric Surveillance Unit
ESPED German Paediatric Surveillance Unit
IPSU Irish Paediatric Surveillance Unit
LPSU Latvian Paediatric Surveillance Unit
MPSU Malyasian Paediatric Surveillance Unit
NSCK Netherlands Paediatric Surveillance Unit
NZPSU New Zealand Paedatric Surveillance Unit
PNGPSU Papua New Guinea Paediatric Surveillance Unit
PPSU Portuguese Paediatric Surveillance Unit
SPSU Swiss Paediatric Surveillance Unit
WPSU Welsh Paediatric Surveillance Unit
 
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