 Countries:
Germany
Name
German Paediatric Surveillance Unit (ESPED)
Website
www.esped.uni-duesseldorf.de
Year established
July 1992
Association
University of Düsseldorf and Munich, Germany
Population under 15 years
12 million
General information
Encouraged by the success of the BPSU, a German adaptation of the surveillance
scheme called the ESPED was initiated in July 1992 to cover the country
which has one of the largest child populations of any of the units (around
12 million). The surveillance system differs from the original British
methodology in that cards are sent to paediatric department heads to
complete. The response rates for the 460 groups of clinicians have risen
significantly from 75% in 1992 to 95% in 2011, with the follow-up rate
of completion of questionnaires in the range of 59 to 100%.
Conditions studied
Current studies include:
Diabetes mellitus under 5 years / Insulin-depended diabetes mellitus, Kawasaki disease, Pneumococcal sepsis/Meningitis, Febrile infection-related epilepsy syndrome; Pleural empynma and complicated parapneumonic empyema in children and adolescents; extreme obesity
A number of studies have been completed. These include:
Autoimmune hepatitis, acute liver failure, acute renal failure, fatal/near
fatal asthma, steroid-resistant nephrotic syndrome, tic borne encephalitis,
invasive group B streptococcal disease, live threatening and lethal
poisoning, GLUT 1-deficiency /de vivo disease, Invasive haemophilus
influenzae infections type b, haemorrhagic shock and encephalopathy
syndrome, HUS, hypophosphatasia, Idiopathic juvenile osteoporosis,
kernicterus I, imported tropical diseases (malaria, schistosomiasis,
leishmaniasis), ischamic stroke in infants, Idiopathic thrombocytopenia,
kawasaki disease, systemic meningococcal infections, aseptic meningitis
following MMR-vaccination / MMR vaccine-associated meningoencephalitis,
multiple sclerosis in infants, narcolepsy, organoacidopathia and fatty
acid oxidation defects, hospitalised pertussis, complications of pertussis,
neonatal infections due to fungi (candida), Reye's syndrome, RSV disease
requiring intubation and artificial ventilation, intersexuality and
severe genital malformations, neonatal thrombosis, transient myeloproliferative
syndrome in neonates with Down-Syndrome, Ondine's Curse, varicella
complications and haemorrhagic disease of the newborn (Vitamin K deficiency
bleeding). Ccomplications of Varicella Zoster Virus or Herpes Zoster, inherited hypocalemic salt-losing tubulopathies / Bartter-like syndromes,, Invasive Haemophilus influenzae infections (all types), systemic lupus erythematosus, hereditary periodic fever syndrome (FMF, HIDS, MA, TRAPS, CINCA, MWS, FCAS), Complications of measles, , atypical mycobacteriosis, Ingestion of lamp oil (intoxications), neonatal sinus venous thrombosis and kernicterus II.
Contact
Professor R von Kries
Institute for Social Paediatrics and Adolescent Medicine
Ludwig-Maximilians University Munich, Germany
Tel: 89 71009 314 Fax: 89 71005 315
Email: Prof.von.kries@gmx.de
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