 Countries:
Netherlands
Name
Netherlands Paediatric Surveillance Unit (NSCK)
Website
www.nvk.pedianet.nl
Year established
October 1992
Population under 15 years
3 million
General information
Around 640 paediatricians in general and academic hospitals receive
the monthly card. The eight university hospitals have each nominated
specific personnel to respond for separate disorders and to be responsible
for reporting all cases in that hospital. The overall response rate for
the paediatricians receiving the card has risen from 83% in 1992 to 92%
in 2004. The follow-up rate is also high at over 90%. In 2004 we had
1376 reported cases and 9 publications as a result of studies under surveillance.The
importance of full case ascertainment has been realised and where possible
alternative complementary data sources have been recruited for particular
disorders.
For example, surveillance of diabetes was strengthened by the inclusion
of the Dutch Diabetic Association, while surveillance of invasive Haemophilus
influenzae infection was improved by using reports from the Netherlands
Reference Laboratory for bacterial meningitis and neural tube defects
ascertainment was realised with the national neonatal registry and the
parents association.
Conditions studied
Current studies include:
Medium Chain Acyl-coA Dehygrogenase Deficiency, Diabetes Mellitus,
Hemoglobinopathy, Down’s syndrome, Nephrotic syndrome, Insufficient
breastfeeding, Henoch-Schönlein Purpura, Shaken Baby Syndrome,
Congenital malformation after maternal use of epileptica, Vitamin K
deficiency bleeding.
Contact
Rob Rodrigues Pereira
Pediatrician
TNO Prevention and Health
PO Box 2215 , 2301 CE Leiden, Netherlands
Netherlands
Tel: ++ 31 71 518 1838 Fax: ++ 31
71 518 19 20
Email:rob.rodriguespereira@tno.nl l
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