NetherlandsCountries: Netherlands

Name

Netherlands Paediatric Surveillance Unit (NSCK)

NSCK logo

Website

www.nvk.pedianet.nl

Year established

October 1992

Population under 15 years

3 million

General information

Around 640 paediatricians in general and academic hospitals receive the monthly card. The eight university hospitals have each nominated specific personnel to respond for separate disorders and to be responsible for reporting all cases in that hospital. The overall response rate for the paediatricians receiving the card has risen from 83% in 1992 to 92% in 2004. The follow-up rate is also high at over 90%. In 2004 we had 1376 reported cases and 9 publications as a result of studies under surveillance.The importance of full case ascertainment has been realised and where possible alternative complementary data sources have been recruited for particular disorders.

For example, surveillance of diabetes was strengthened by the inclusion of the Dutch Diabetic Association, while surveillance of invasive Haemophilus influenzae infection was improved by using reports from the Netherlands Reference Laboratory for bacterial meningitis and neural tube defects ascertainment was realised with the national neonatal registry and the parents association.

Conditions studied

Current studies include:

Medium Chain Acyl-coA Dehygrogenase Deficiency, Diabetes Mellitus, Hemoglobinopathy, Down’s syndrome, Nephrotic syndrome, Insufficient breastfeeding, Henoch-Schönlein Purpura, Shaken Baby Syndrome, Congenital malformation after maternal use of epileptica, Vitamin K deficiency bleeding.

Contact

Rob Rodrigues Pereira
Pediatrician
TNO Prevention and Health
PO Box 2215 , 2301 CE Leiden, Netherlands
Netherlands

Tel: ++ 31 71 518 1838 Fax: ++ 31 71 518 19 20
Email:rob.rodriguespereira@tno.nl l