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The Welsh system looks at conditions in children in Wales, which are considered too common for a UK study or too uncommon for a local hospital to perform. The WPSU uses similar methodology to the orange card system of the British Paediatric Surveillance Unit (BPSU) with whom we have a close relationship. We endeavour to discuss all our new projects with the BPSU to ensure that there is no overlap:one study was suspended (subdural haemorrhages) whilst the UK study was performed.
Monthly green cards listing the conditions currently being studied are distributed by post or by email to consultant paediatricians and senior doctors working in Wales and covering an approximate child population of 560,000. The green card or email card is then returned to the new Surveillance Office with Cardiff and Vale NHS Trust at the University Hospital of Wales in Cardiff.
Mailings can be extended to include other consultants in Wales, particularly if older children may be affected. This has been very successful in studies involving Acute and Chronic Renal failure and Inflammatory Bowel Disease. Paediatricians along the border of England have also been very helpful where some Welsh children have been treated outside Wales. Latterly general surgeons and neurologists throughout Wales have also been very helpful with the studies on gall stones in children and juvenile myoclonic epilepsy.
It is important that the system encourages and supports all doctors involved in the projects, feeding back as much information to individual doctors as possible and thereby increasing the awareness of the studies. The system is there for everyone to use and we hope that paediatricians in training will also see this system as an opportunity to help with research and audit projects. They may initiate studies under supervision.
The unit looks to provide the Welsh National Assembly with data that can assist in the planning of Health Care for Children in Wales, to act as a resource for the determination of the epidemiology of diseases in childhood and to assist audit and research.
Dr Gwyneth Owen - Chair (c/o Ms. H. O'Connell - Administrator WPS)
Child Health Directorate
University Hospital of Wales
Tel: 029 2074 3946 (8.00am - 4.30pm: Tuesday, Wednesday and Thursday)Dr Johann te Water Naudé - Director