Background
The BPSU was established in 1986. It is a joint initiative of the Royal College of Paediatrics and Child Health (RCPCH), Public Health England (PHE) and the UCL GOS Institute of Child Health (ICH). The BPSU has enabled paediatricians to participate in the national epidemiological surveillance of rare childhood conditions in the UK and Republic of Ireland. Through the Units national data collection doctors and researchers can map the incidence of particular disorders, evaluate care and identify trends. With over 3800 participating paediatricians the Unit regularly achieves a response rate of over 90%.
Since its inception the BPSU has initiated over 100 studies; collected information on over 25,000 cases; published and presented over 300 papers; held several scientific symposia; developed links with parent support groups; and encouraged the development of similar surveillance units within the UK and abroad.
Contact details
Richard Lynn MBPsS, MSc (Scientific Coordinator)
British Paediatric Surveillance Unit
Royal College of Paediatrics and Child Health
5-11 Theobalds Road, London WC1X 8SH
Tel: 020 7092 6173