2019-06-27
Duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA) incidence calculations for <24 yr olds in Germany
New (NOT-INOPSU!) study out in BMC on "Duchenne muscular dystrophy (DMD) and spinal muscular atrophy (SMA) incidence calculations for <24 yr olds in Germany”
Open source publish...
2009-08-01
Public health impacts of INoPSU
Published 2009
Public health impacts of the International Network of Paediatric Surveillance Units. Paediatrics & Child Health, 14(8), p.499.
- Grenier, D.
- Lynn, R.
- Zury...
2008-06-01
Rare childhood diseases: how should we respond?
Published 2008
Rare childhood diseases: how should we respond?. Archives of disease in childhood. 2008 Dec;93(12):1071-4.
- Zurynski, Y.A.
- Frith, K.
- Leonard, H.
- Elliot...
2007-06-01
Beyond counting cases: public health impacts of national Paediatric Surveillance Units
Published 2007
Beyond counting cases: public health impacts of national Paediatric Surveillance Units. Archives of disease in childhood. 2007 Jun;92(6):527-33.
- Grenier, D....
2001-06-01
Rare disease surveillance: an international perspective
Published 2001
Rare disease surveillance: an international perspective. Paediatrics & Child Health 6, no. 5: 251-260.
- Elliot, EJ.
- Nicoll, A.
- Lynn, R.
- Marchessault, V...