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BPSU 30 Year Anniversary! 05-Jun-2015

Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more

Rare Disease Educational Workshop14-Mar-2014

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INOPSU Website24-Aug-2013

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INOPSU Workshop24-Aug-2013

Workshop: International Network of Paediatric Surveillance Units: The Power of Interna.. read more

Launch of INOPSU 15 Year Report24-Aug-2013

The report "15 Years of International Research into Rare Childhood Diseases" will b.. read more

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What's New!


Congratulations to the British Paediatric Surveillance Unit on their 30th Anniversary!

From everyone at International Network of Paediatric Surveillance Units, our heartfelt congratulations to all involved with the BPSU. BPSU was the first national surveillance unit designed specifically to collect data on rare childhood conditions. 

The methodology was innovative 30 years ago and it continues to be used by at least 11 national surveillance units across the world

BPSU has provided vital and unique data on over 100 rare childhood diseases, and has been proactive in using these data to inform clinical practice and public health policy.

Congratulations to all British and Irish paediatricians for contributing to the many successes of the BPSU through participation in BPSU surveillance.

As the late Sir Cyril Clarke, BPSU chairman, stated in 1991:

“British and Irish paediatricians can feel justly proud of themselves as pioneers and as key enactors in this unique reporting system”

BPSU, we thank you for your innovative approach and significant leadership over the last 30 years and we look forward to your continued success!

For more information on the BPSU please visit their website:




 The official video for Rare Disease Day 2014 is out!