- All
- Australian Unit
- British Unit
- Canadian Unit
- Greece & Cyprus Unit
- German Unit
- Irish Unit
- Latvian Unit
- Malaysian Unit
- Netherlands Unit
- New Zealand Unit
- Papua New Guinea Unit
- Portuguese Unit
- Swiss Unit
- Welsh Unit
- Belgium Unit
• Annual Report of the Lead Exposure in Children Surveillance in England, detailing the cases captured through the surveillance in 2018
A national surveillance study of childhood epilepsy mortality in the UK and Ireland
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Abdel‐Mannan O, Sutcliffe AG.; European Journal of Neurology. 2020 Feb;27(2):327-
Description
Canadian Unite: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Acute Flaccid Paralysis
Surveillance Units: Australian Unit, Canadian Unit, British Unit, Irish Unit, New Zealand Unit, Swiss Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Desai S, Smith T, Thorley BR, Grenier D, Dickson N, Altpeter E, et al. Performance of acute flaccid paralysis surveillance compared with World Health Organization standards. J Paediatr Child Health. 2015; 51 (2):209-214
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Macey J, Lipskie T. AFP surveillance in Canada. Pan American Health Organization Immunization Newsletter, Apr 2007; XXIX(2):1-3
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Salisbury DM, Ramsay ME, White JM, Brown DW. Polio Eradication: Surveillance Implications for the United Kingdom. The Journ. of Infect. Dis 1997; 175 (Suppl 1): S156-9
Irish Unit: robert.cunney@hse.ie
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Chambers ST, Dickson NP, Global polio eradication: progress, but determination and vigilance still needed. New Zealand Medical Journal, 2012; 124(1337):100-104
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Braccio S, Irwin A, Riordan A, et al. Acute infectious hepatitis in hospitalised children: a British Paediatric Surveillance Unit study. Arch Dis Child. 2017 Jul;102(7):624-628
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Majbar AA, Cusick E, Johnson P, Lynn RM, Hunt LP, Shield JP. Incidence and Clinical Associations of Childhood Acute Pancreatitis. Pediatrics. 2016 Sep;138(3).
Acute pediatric hepatitis of unknown origin
Surveillance Units: Swiss Unit
Description
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Acute post streptococcal glomerulonephritis (APSGN)
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Wong, W., Lennon, D. R., Crone, S., Neutze, J. M., & Reed, P. W. Prospective population‐based study on the burden of disease from post‐streptococcal glomerulonephritis of hospitalised children in New Zealand: Epidemiology, clinical features and complications. Journal of Paediatrics and Child Health, 2013; 49(10): 850-855.
German Unit: Dresden@Paediatrische-Infektiologie.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Acute rheumatic fever
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Carapetis JR, Noonan S, Elliott E, Zurynski Y, Currie B, McDonald M, Wheaton G, Nissen M, Ramsay J, Isaacs D, Richmond P, Curtis N, Heazlewood R. National Surveillance for Acute Rheumatic Fever in Australian Children. National Heart Foundation of Australia Conference, Brisbane, May 2009.
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Bolz D. Incidence du rhumatisme articulaire aigu chez l'enfant en Suisse. 4eCongrès de Rhumatologie et Pédiatrie. Strasbourg, 21.–22.4.2006
German Unit: Dresden@Paediatrische-Infektiologie.de, www.esped.uni-duesseldorf.de
Publication: -
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Goldbloom EB, Mokashi A, Cummings EA, Abish S, Benseler SM, Huynh H, Watson W, Ahmet A.. Symptomatic adrenal suppression among children in Canada. Arch Dis Child 2016 Nov 9.
Adverse drug reactions - serious and life threatening/fatal
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Grenier D, Doherty J, Medaglia A Paediatric adverse drug reactions can be fatal. . Paediatr Child Health 2003;8(4):218
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Kunac, D., Tatley, M., Grimwood, K., Reith, D. Active surveillance of serious drug adverse reactions in New Zealand children. Archives of Disease in Childhood, 2012; 97(8):761-762
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Cheng K, Masters S, Stephenson T, Cooke R, Ferner R, Ashworth M, Nunn T, Identification of suspected fatal adverse drug reactions by paediatricians: a UK surveillance study, Arch Dis Child 2007, doi:10.1136/adc.2006.107789,
Adverse effects from complementary and alternative medicine
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Lim A, Cranswick N, Skull S, South M. Adverse Events associated with the use of Complementary and Alternative Medicine in Australian children. Clinical Pharmacology and Therapeutics 2002; 71(2):76
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Zorzela L, Boon H, Mior S, Yager J, Gross A, Vohra S. Serious adverse events associated with pediatric complementary and alternative medicine. Eur J Integr Med 2014;6(4):467-72.
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Adverse neonatal outcomes of delivery and labour in water (Water Births)
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Gilbert R, Tookey PA.Perinatal Mortality and Morbidity among babies delivered in water: surveillance study and postal survey. BMJ 1999; 319: 483-487
Albuminuria (persistent) in the paediatric population with type 2 diabetes mellitus
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Sellers EA, Hadjiyannakis S, Amed S, Dart AB, Dyck RF, Hamilton J, Langlois V, Panagiotopoulos C, Dean HJ. Persistent albuminuria in children with type 2 diabetes: A Canadian Paediatric Surveillance Program study. J Pediatr 2016 Jan;168:112–7
Alcohol intoxication in adolescents
Description
Irish Unit: robert.cunney@hse.ie
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Simons FER, Chad ZH, Gold M. Real-time reporting of anaphylaxis in infants, children and adolescents by physicians involved in the Canadian Paediatric Surveillance Program. Journal of Allergy and Clinical Immunology 2002;109:S181
Irish Unit: Sandra.Morgan@cuh.ie
Publication:
Grabenhenrich LB, Dölle S, Ruëff F, Renaudin J-M, Scherer K et al. Epinephrine in severe allergic reactions - the European Anaphylaxis Register. J Allergy Clin Immunol Pract. 2016 Apr;137(4):1128-1137
J Allergy Clin Immunol Pract. 2018.10.1016.j.jaip.2018.02.026
• The Journal of allergy and clinical immunology 137(4)
• DOI
• 10.1016/j.jaci.2015.11.015
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Lajeunesse M. Arch Dis Child 2012;97:487–490. Anaphylaxis as an adverse event following immunisation in the UK and Ireland
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unite: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Viner RM, Teoh Y, Williams DM, Patterson M N , Hughes IA. Androgen Insensitivity Syndrome, a survey of diagnostic ad management in the UK. Arch Dis Child 1997; 77(4): 305-309
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Semmekrot BA, van Sleuwen BE, Engelberts AC, Joosten KF, Mulder JC, Liem KD, Rodrigues Pereira R, Bijlmer RP, L'Hoir MP. Surveillance study of apparent life-threatening events (ALTE) in the Netherlands. Eur J Pediatr 2010;169(2):229-36.),
Aseptic meningitis following MMR-vaccination / MMR vaccine-associated Meningoencephalitis
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Schlipköter U, Mühlberger N, von Kries R, Weil J. Surveillance of Measles Mumps Rubella vaccine-associated aseptic Meningitis in Germany. Infection 2002;30:351-355
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Schmitz T, von Kries R, Wjst M, Schuster A. A nationwide survey in Germany on fatal and near-fatal asthma in children: different entities? Eur Respir J 2000;16:845-849
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Avoidant/Restrictive Food Intake Disorder (ARFID)
Surveillance Unit: British Unit
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Okike IO, Johnson AP, Henderson KL, Blackburn RM, et al; the neoMen study group. Incidence, Aetiology and Outcome of Bacterial Meningitis in Infants Aged <90 days in the UK and Republic of Ireland: prospective, enhanced, national population-based surveillance Clin Infect Dis. 2014 Jul 4. pii: ciu514 [Epub ahead of print] http://www.ncbi.nlm.nih.gov/pubmed/24997051
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Jansson AF, Grote V for the ESPED Study Group. Nonbacterial osteitis in child-ren: data of a German Incidence Surveillance Study. Acta Paediatr 2011 Feb 25
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication:
Saxena A, Gibbon F, te Water Naudé J, Hamandi K. BECTS incidence in Wales – unreported or overestimated? Epilepsia 2014;55S(2):4–246
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
McKiernan P, Baker A, Kelly D. The frequency and outcome of biliary atresia in the UK and Ireland. Lancet 2000; 355: 25-29
Button battery ingestion, inhalation or insertion (excluding Scotland)
Surveillance Unit: British Unit
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Case ascertainment in active paediatric surveillance systems: a report from the British Paediatric Surveillance Unit Ascertainment Group
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Lynn RM, Reading R; Archives of Disease in Childhood 2020;105:62-68
Cerebral oedema and death following diabetic ketoacidosis
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Edge JA, Hawkins MM, Winter DL. The risk and outcome of cerebral oedema developing during diabetic ketoacidosis.Arch Dis Child 2001; 85: 16-22
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Lawrence SE, Cummings EA, Gaboury I, Daneman D. Population-based study of incidence and risk factors for cerebral edema in paediatric diabetic ketoacidosis. J Pediatr 2005;146:688-92
Cerebral vascular disease, stroke and like illness
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Williams G, Wilson M, Rose D, on behalf of the APSU CHARGE Parents Association and Study group and contributors to the APSU. The epidemiology and clinical features of the CHARGE association in Australian children 2000-2002. Portuguese Paediatric Surveillance Unit Bulletin 2004; 5(1): 17.
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Issekutz KA, Graham JM, Prasad C, Smith IM, Blake KD. An epidemiological analysis of CHARGE syndrome: Preliminary results from a Canadian study. . Am J Med Gen 2005;133A:309-17
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Mucklow E S. Chemistry Set Poisoning. Internat. Journ. Clin. Pract 1997; 51.5: 321-23
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Abdominal injury due to child abuse. Barnes PM, Norton CM, Dunstan FD, Kemp AM, Yates DW, Sibert JR. Lancet. 2005 Jul 16-22; 366(9481): 234-5
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication:
Child Death Review 2014*
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Twiss J, Metcalfe R, Edwards E, Byrnes C. New Zealand National Incidence of bronchiectasis "too high" for a developed country. Archives of Disease in Childhood 2005; 90:737–740
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Nunn K, Williams K, Ouvrier R. The Australian childhood dementia study. European Child and Adolescent Psychiatry 2002; 11(2): 63-70.
Childhood Stroke (CS)
Surveillance Unit: Welsh Unit
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Chronic recurrent multifocal osteomyelitis / chronic nonbacterial osteomyelitis (CRMO/CNO) disease
Surveillance Unit: British Unit
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Haines C, Walsh B, Fletcher M, Davis PJ. Chylothorax development in infants and children in the UK. Arch Dis Child. 2014 Apr 4. doi: 10.1136/archdischild-2013-304364. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/24704707
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Absoud M, Lim MJ, Chong WK, et al. Paediatric acquired demyelinating syndromes: incidence, clinical and magnetic resonance imaging features. Mult Scler. 2012. Epub 2012 Apr 19. PMID: 22516794
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Banwell B et al. Incidence of acquired demyelination of the CNS in Canadian children. Neurology 2009;72;232-9
Description
Irish Unit: robert.cunney@hse.ie
Publication:
Coeliac Disease in Irish Children. Breatnach, C; Scanlon, P; Foran, A; Memon, A; Gill,D.; Bedford D.; Gormally S. Journal of Pediatric Gastroenterology and Nutrition: June 2004 - Volume 39 - Issue - pp S219-S220
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Steens R.F.R, Csizmadia C.G.D.S, George E.K, Ninaber M.K, Hira Sing R.A, Mearin, M.L. A National Prospective Study on Childhood Celiac Disease in the Netherlands 1993#82112000: An Increasing Recognition and a Changing Clinical Picture. J Pediatr 2005(147);2 :239-43
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Combined immunodeficiency - Severe
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Yee A, De Ravin SS, Elliott E, Ziegler JB; Contributors to the Australian Paediatric Surveillance Unit. Severe combined immunodeficiency syndrome: a national surveillance study. Pediatric Allergy and Immunology 2008; 298-302.
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Rozmus J, Junker A, Thibodeau ML, Grenier D, Turvey SE, Yacoub W, Embree J, Haddad E, Langley JM, Ramsingh RM, Singh V-A, Long R, Schultz KR. Severe combined immunodeficiency (SCID) in Canadian children: A national surveillance study. J Clin Immunol 2013;33:1310-6
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Schönberger K, Ludwig M-S, Wildner M, Weissbrich B. Epidemiology of Subacute Sclerosing Panencephalitis (SSPE) in Germany from 2003 to 2009: A Risk Estimation. PLoS ONE 2013; 8(7): e68909. DOI:10.1371/journal.pone.0068909
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Shai S, Perez-Becker R, von König CH Wirsing, von Kries R, Heininger U, Forster J, Huppertz HI, Roos R, Göbel U, Niehues T. Rotavirus Disease in Germany—A Prospective Survey of Very Severe Cases. Pediatr Infect Dis J 2013;32 (2):e62-67
Complications of varicella zoster virus or herpes zoster
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Liese JG, Grote V, Rosenfeld E, Fischer R, Belohradsky B H, von Kries R and the ESPED Varicella Study Group. The Burden of Varicella Complications Before the Introduction of Routine Varicella Vaccination in Germany. Pediatr Infect Dis J 2008;27:119-124
Irish Unit: robert.cunney@hse.ie
Publication: -
Congenital adrenal hyperplasia (CAH)
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Gleeson HK, Wiley V, Wilcken B, Cowell CT, Thonsett M, Byrne G, Elliott E, Ambler GR. Two year pilot study of newborn screening for congenital adrenal hyperplasia in New South Wales compared with nationwide case surveillance in Australia. Journal of Paediatrics and Child Health 2008; 44(10): 554-559.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Khali M. Arch Dis Child. 2012 Feb;97(2):101-6.. Incidence and clinical features of newly diagnosed of Congenital Adrenal Hyperplasia in Great Britain 2) 4. JM Khalid, JM Oerton, C Dezateux, PC Hindmarsh, CJ Kelnar, RL Knowles. Late clinical presentation of congenital adrenal hyperplasia in older children: findings from national paediatric surveillance. Arch Dis Child 2014 Jan;99(1):30-4. http://www.ncbi.nlm.nih.gov/pubmed/24043550
Irish Unit: robert.cunney@hse.ie
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Hodson EM, Willis NS, Craig JC. Management of childhood nephrotic syndrome in Australia. Journal of Paediatrics and Child Health 2001; 37(6): A10
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Evans-Jones G, Kay S P J, Weindling A M, Cranny G, Ward A, Bradshaw A, Hernon C. Congenital brachial palsy; incidence, causes, and outcome in the United Kingdom and Republic of Ireland. Arch Dis Child. Fetal Neonatal Ed 2003; 88: F185-F189
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Rahi J, Dezateux C, National cross sectional study of detection of congenital and infantile cataract in the United Kingdom: role of childhood screening and surveillance. BMJ 1999: 318; 362-365
Congenital cytomegalovirus (cCMV) or cytomegalovirus infection
Surveillance Units: Australian Unit, Britsh Unit, Canadian Unit, Portuguese Unit, Swiss Unit, New Zeeland Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Bartlett AW, Hall BM, Palasanthiran P, McMullan B, Shand AW, Rawlinson WD. Recognition, treatment, and sequelae of congenital cytomegalovirus in Australia: An observational study. Journal of Clinical Virology 2018; 108: 121-125.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Townsend CL, CS Peckham CS, Tookey PA. Surveillance of congenital cytomegalovirus in the UK and Ireland. ADC-FNN 2011 has recently been published on-line and can be viewed at http://fn.bmj.com/content/early/2011/02/01/adc.2010.199901.full.pdf
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Vaudry W, Lee BE, Rosychuk RJ. Congenital cytomegalovirus infection in Canada: Active surveillance for cases diagnosed by paediatricians. Paediatr Child Health 2014;19(1):e1-e5
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
New Zealand Unit: elizabeth@adhb.govt.nz, www.otago.ac.nz/nzpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Dezateux C, Godward S. A national survey of screening for congenital dislocation of the hip. Arch. Dis. Child 1996; 74: 445-448
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Knowles R, Oerton J, Cheetham T et al. J Clin Endocrinol Metab. 2018 Oct; 103(10): 3720–3728.
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Campbell C, Levin S, Siu VM, Venance S, Jacob P. Congenital myotonic dystrophy: Canadian population-based surveillance study. J Pediatr 2013;163(1):120-5.
Congenital rubella syndrome
Surveillance Units: Australian Unit, British Unit, Canadian Unit, New Zealand Unit, Swiss Unit, Netherlands Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Khandaker G, Zurynski Y, Jones C. Surveillance for congenital rubella in Australia since 1993: cases reported between 2004 and 2013. Vaccine. 2014; 32(50):6746-6751
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Miller E, Waight P, Gay N, Ramsay M, Vurdien J, Morgan-Capner P, Hesketh L, Brown D, Tookey P, Peckham C.The epidemiology of rubella in England and Wales before and after the 1994 measles and rubella vaccination campaign:
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Tam T. Following up on unfinished business – prenatal rubella screening and postpartum vaccination CMAJ 1998;159(9):1117-8
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Hurtig A-K, Nicoll A, Carne C, Lissauer T, Connor N, Webster JP, Ratcliffe L. Syphilis in pregnant women and their children in the United Kingdom: results from national clinician reporting surveys 1994-7. BMJ 1998; 317:1617-19
Congenital Syphilis
Surveillance Unit: Canadian Unit
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Simms I, Tookey PA, Goh BT, Lyall H, Evans B, Townsend CL, Fifer H, Ison C. The incidence of congenital syphilis in the United Kingdom: February 2010 to January 2015. BJOG. 2017 Jan;124(1):72-77
Congenital toxoplasmosis
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Hall SM. Congenital Toxoplasmosis (Regular Review). Brit. Med. J 1992;306: 291-297
Gilbert R, Hooi HK, Cliffe S, Stanford M, Guy E. Symptomatic toxoplasma infection due to congenital and postnatally acquired infection. Arch Dis Child 2006;91(6): 495-8
Greece & Cyprus Unit: xhatzi@med.uth.gr
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication:
Ferguson W, Mayne PD, Lennon B, Butler K, Cafferkey M. Susceptibility of pregnant women to toxoplasma infection--potential benefits for newborn screening. Ir Med J. 2008 Jul-Aug;101(7):220-1.
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Swiss Unit: mirjam.mauesezahl@bag.admin.ch, www.spsu.ch
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Nettesheim S, Kölker S, Karall D, Häberle J, Posset R, Hoffmann GF, Heinrich B, Gleich F, Garbade SF, on behalf of APS, E-IMD, ESPED, Austrian Metabolic Group, SPSU. Incidence, disease onset and short-term outcome in urea cycle disorders – cross-border surveillance in Germany, Austria and Switzerland. Orphanet J Rare Dis 2017;12:111. doi: 10.1186/s13023-017-0661-x.
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
New Zealand: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Conservative care in end-stage kidney disease
Surveillance Unit: British Unit
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Kozlowsaka K, Nunn KP, Rose D, Morris A, Ouvrier RA, Varghese J. Conversion disorder in Australian paediatric practice. Journal of the American Academy of Child and Adolescent Psychiatry 2007; 46(1): 68-75.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Ani C, R Reading, R Lynn, et al. Incidence and 12-month outcome of non-transient childhood conversion disorder in the UK and Ireland. 2013 Brit Jrnl Psych Jun;202:413-8
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Covid-19 Hospitalized patients with acute COVID-19
Surveillance Unit: Canadian Unit
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Covid-19 Hospitalized patients with paediatric inflammatory multisystem syndrome/Kawasaki disease temporally associated with COVID-19
Surveillance Unit: Canadian Unit
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
COVID-19 in hospitalized children and non-hospitalized children with chronic co-morbid conditions
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Mehr S, Allen R, Boros C, Adib N, Kakakios A, Turner PJ, Rogers M, Zurynski Y, Singh‐Grewal D. Cryopyrin‐associated periodic syndrome in Australian children and adults: Epidemiological, clinical and treatment characteristics. Journal of paediatrics and child health. 2016 Sep;52(9):889-95.
Description
Irish Unit: robert.cunney@hse.ie
Publication:
Fitzpatrick E, Bourke B, Drumm B, Rowland M. The incidence of cyclic vomiting syndrome in children: population-based study. Am J Gastroenterol. 2008 Apr;103(4):991-5.Epub 2007 Dec 5
Description
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Die zystische periventrikuläre Leukomalazie in der Schweiz 1995 bis 1997: Inzidenz und assoziierte Faktoren. Schweiz Med Wochenschr 1998; 128 (Suppl 99): 7S
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Major depressive disorder among pre-adolescent Canadian children: Rare disorder or rarely detected? Korczak DJ, Ofner M, LeBlanc J, Wong S, Feldman M, Parkin PC. Acad Pediatr 2016;17(2):191–197
Deficiency of lysosomal acid lipase (LAL D) in children and (young) adults
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Delayed access to care and late presentations in children during the COVID-19 pandemic: a snapshot survey of 4075 paediatricians in the UK and Ireland
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Lynn RM, Avis JL, Lenton S, et al., Archives of Disease in Childhood Published Online First: 25 June 2020. doi: 10.1136/archdischild-2020-319848
Delays in accessing medical care during the first wave of Covid-19
Surveillance Unit: Welsh Unit
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Korczak DJ, Ofner M, LeBlanc J, Wong S, Feldman M, Parkin PC. Major depressive disorder among pre-adolescent Canadian children: Rare disorder or rarely detected? Acad Pediatr 2016;17(2):191–197
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Shield JPH, Wadsworth E, Baum JD.The genetic contribution to disease pathogenesis in childhood diabetes is greatest in the very young. Diabetic Medicine 1995;12(5): 377-9
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Chandler T, Mahmoud O, Lynn RM, et al. Continuing rise of Type 2 Diabetes in Children and Young People in the UK. Diabet Med. 2018 Jun;35(6):737-744
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Metcalfe MA, Baum JD. Incidence of Insulin Dependent Diabetes in Children Aged Under 15 Years in the British Isles During 1988. Brit. Med. J; 1991: 302: 443-7
Diabetes in under fives - insulin dependent (IDDM)
Description
British Unit: www.bpsu.org.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Shield JP, Wadsworth EJ, Hobbs K, Baum JD.Dermatoglyphics, fetal growth, and insulin dependent diabetes in children under 5 years.Arch. Dis. Child 1995;72(2):159-60
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Diabetes melitus
Surveillance Units: New Zealand Unit, Welsh Unit, Irish Unit, British Unit, Canadian Unit, Netherlands Unit, Portuguese Unit, German Unit
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Campbell-Stokes P. L. & Taylor B. J. on behalf of the New Zealand Children’s Diabetes Working Group. Prospective incidence study of diabetes mellitus in New Zealand children aged 0 to 14 years. Diabetologia 2005; 48: 643–648
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Haines L, Wan KC, Lynn R, Barrett TG, Shield JP.Rising incidence of type 2 diabetes in children in the United Kingdom. Diabetes Care 2007; 30(5): 1097-1101
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
C, Sellers, EAC, Hadjiyanakis S, Laubscher TA, Dannenbaum D, Shah BR, Booth GL, Hamilton, Amed S, Dean HJ. Type 2 diabetes, medication-induced diabetes, and monogenic diabetes in Canadian children: A prospective national surveillance study. Panagiotopoulos JK. Diabetes Care 2010; 33(4):786-91
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Wouwe JP van, Jacobusse G, Buuren S van. Seasonal variation in the diagnosis of type 1 diabetes. (letter) Diab Res Clin Res 2008;79:e13
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Baechle C, Castillo K, Straßburger K, Stahl-Pehe A, Meissner T, Holl RW, Giani R, Rosenbauer J in cooperation with the German Paediatric Surveillance Unit (ESPED) and the DPV-Science initiative. Is disordered eating behavior more prevalent in adolescents with early-onset type 1 diabetes than in their representative peers? International Journal of Eating Disorders 2014; 47:342-52
Description
German Unit: Joachim.Rosenbauer@ddz.uni-duesseldorf.de, www.esped.uni-duesseldorf.de
Publication: -
Diabetes mellitus type II and MODY in paediatric praxis
Description
British Unit: www.bpsu.org.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Latvian Unit: -
Publication: -
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Weijerman WE; Furth MA van, Vonk Noordegraaf T; Wouwe JP van , Broers CJ, Gemke RJBJ, Prevalence, neonatal characteristics and first year mortality of Down syndrome: a national study. J Pediatrics. 2008, 15-9.
Drowning and near drowning
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Ross FI, Elliott EJ, Lam Lt, Cass DT. Children under 5 years presenting to paediatrics with near-drowning. Journal of Paediatrics and Child Health 2003; 39(6):446-450
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Kemp AM, Sibert JR. Outcome in Children Who Nearly Drown: a British Isles Study. Brit. Med. J 1991; 302: 931-933
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Eating disorders - early onset (EOED); anorexia nervosa/bulimia
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Madden S, Morris A, Zurynski Y, Kohn M, Elliott E. The burden of eating disorders in children aged 5-13 years in Australia. Medical Journal of Australia 2009; 190(8): 410-414.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Nicholls DE, Lynn R, Viner RM . Childhood eating disorders: British national surveillance study. British Journal of Psychiatry Apr 1, 2011; 198 (4) 295-301
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Pinhas L, Morris A, Crosby RD, Katzman DK. Incidence and age-specific presentation of restrictive eating disorders in children – A Canadian Paediatric Surveillance Program study. Arch Pediatr Adolesc Med 2011; 165(10):895-9. doi:10.1001/archpediatrics.2011.145
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Ward KN, Andrews NJ, Vertiy CM, Miller E, Ross EM. Human herpesvirus-6 and -7 each cause significant neurological morbidity in Britain and Ireland.Arch Dis Child 2005:90; 619-623
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Battin, M., Sadler, L., Masson, V., & Farquhar, C. Neonatal encephalopathy in New Zealand: Demographics and clinical outcome. Journal of Paediatrics and Child Health, 2017; 52(6):632-636
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Kadambari S, Braccio S, Ribeiro S, DJ et al. Enterovirus and parechovirus meningitis in infants younger than 90 days old in the UK and Republic of Ireland: a British Paediatric Surveillance Unit study. Arch Dis Child 2018 Dec doi: 10.1136/archdischild-2018-315643.
Description
Australian Unit: schn-apsu@health.nsw.gov.au, http://www.apsu.org.au
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unite: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Macdougall CF, Cant AJ, Colver AF. How dangerous is food allergy in childhood? The incidence of severe and fatal allergic reactions across the UK and Ireland. Arch Dis Child 2002; 86: 236-239
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
van Baalen A, Häusler M, Plecko-Startining B, Strautmanis J, Vlaho S, Gebhardt B, Rohr A, Abicht A, Kluger G, Stephani U, Probst C, Vincent A, Bien CG. Febrile Infection-Related Epilepsy Syndrome without Detectable Autoantibodies and Response to Immunotherapy: A Case Series and Discussion of Epileptogenesis in FIRES. Neuropediatrics 2012;43 (04):209-216 DOI: 10.1055/s-0032-1323848
Female Genital Mutilation (one off) (FGM)
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Sureshkumar P, Zurynski Y, Moloney S, Raman S, Varol N, Elliott EJ. Female genital mutilation: Survey of paediatricians' knowledge, attitudes and practice. Child abuse & neglect. 2016;55:1-9.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Fetal alcohol syndrome
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Elliott EJ, Payne J, Morris A, Haan E, Bower C. Fetal alcohol syndrome: a prospective national surveillance study. Archives of Disease in Childhood 2008; 93:732-737
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Wieringen H van, Letteboer TGW, Balemans WAF, Ruiter S de, Rodrigues Pereira R, Lindhout D. Ned Tijdschr Geneeskd 2010; geaccepteerd)
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Leversha, A. M., & Marks, R. E. The prevalence of fetal alcohol syndrome in New Zealand. New Zealand Medical Journal, 1995; 108(1013):502-505.
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Knight M, Pierce M, Allen D et al. The incidence and outcomes of fetomaternal alloimmune thrombocytopenia: a UK national study using three data sources. Br J Haematol. 2011 Feb;152(4):460-8
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
First-time hospitalizations for anorexia nervosa during the COVID-19 pandemic
Surveillance Unit: Canadian Unit
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Food protein induced enterocolitis syndrome (FPIES)
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Mehr S, Frith K, Barnes EH, Campbell DE; FPIES Study Group. Food protein-induced enterocolitis syndrome in Australia: A population based study, 2012-2014. J Allergy Clin Immunol 2017; 140(5):1323-1330.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Honeyman MM, Green A, Holton JB, Leonard JV. Galactosaemia, Results of the British Paediatric Surveillance Study 1988-90.Arch. Dis. Child 1993; 69: 339-341
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Reading R, Arch Dis Child 2011;96:752–757. Genital herpes in children under 11 years and investigations for sexual abuse
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Klepper J, Voit T. Facilitated glucose transporter protein type 1 (GLUT1) deficiency syndrome: impaired glucose transport into brain – a review. Eur J Pediatr 2002;161:295-304
Gonorrhoea, syphillis, chlamydia, trichimas infection in children 1 - 13
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Reading R, Rogstad K, Hughes G, Debelle G. Gonorrhoea, chlamydia, syphilis and trichomonas in children under 13 years of age: national surveillance in the UK and Republic of Ireland. Arch Dis Child. 2014 Aug;99(8):712-6.
Group B streptococcal infection/ invasive disease /infection in the newborn
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Flügge K, Siedler A, Heinrich B, Schulte-Mönting J, Mönnig M, Bartels D, Dammann O, von Kries R, Berner R and the ESPED Study Group. Incidence and Clinical Presentation of Invasive Neonatal Group B Streptococcal Infections in Germany. Pediatrics (2006) 117:1139-1145
Fluegge K, Wons J, Spellerberg B, Swoboda S, Siedler A, Hufnagel M, Berner R. Genetic differences between invasive and noninvasive neonatal group B streptococcal isolates. Pediatr Infect Dis J 2011 Dec;30(12):1027-31
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
O’Sullivan CP, Lamagni T, Patel D, Efstratiou A, Cunney R, Meehan M, Ladhani S, Reynolds AJ, Campbell R, Doherty L, Boyle M, Kapatai G, Chalker V, Lindsay D, Smith A, Davies E, Jones CE, Heath PT. Group B streptococcal disease in UK and Irish infants younger than 90 days, 2014-15: a prospective surveillance study. . Lancet Infect Dis. 2018 Nov 26. pii: S1473-3099(18)30555-3. doi: 10.1016/S1473-3099(18)30555-3.
Heath PT, Balfour G, Weiser AM, Efstratiou A, Lamagni TL, Tighe H, O'Conell LAF, Cafferkey M, Verlander NQ, Nicoll A, McCartney AC. Group B streptoccal disease in UK and Irish infants < 90 days of age. Lancet 2004; 363: 292-4
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Verity C, Stellitano L, Winstone AM, et al. Pandemic A/H1N1 2009 influenza vaccination, preceding infections and clinical findings in UK children with Guillain-Barre Syndrome”. Arch Dis Child, doi: 10.1136/archdischild-2013-304475 http://www.ncbi.nlm.nih.gov/pubmed/24585755
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Argent E, Emder P, Monagle P, Mowat D, Petterson T, Russel S, Sachdev R, Stone C, Ziegler D. An APSU study of haemoglobinopathies in Australian children. RACP Congress Melbourne, May 2007. Journal of Paediatrics and Child Health (in Press)
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Haemolytic uraemic syndrome
Surveillance Units: British Unit, New Zealand Unit, Australian Unit, German Unit, Greece & Cyprus Unit, Portuguese Unit, Swiss Unit, Canadian Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Elliott EJ, Robins-Browne RM, O'Loughlin EV, Bennett-Wood V, Bourke J, Henning P et al. Nationwide study of haemolytic uraemic syndrome: clinical, microbiological and epidemiological features. Archives of Diseases of Childhood 2001; 85:125-131
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Lynn RM, O'Brien SJ, Taylor CM, Adak GK, Chart H, Cheasty T, Coia JE, Gillespie IA, Locking ME, Reilly WJ, Smith HR, Waters A, Willshaw GA. Childhood hemolytic uremic syndrome. United Kingdom and Ireland. Emerg Infect Dis 2005; 11 (4): 590-6
Milford DV, Taylor DM, Guttridge B, Hall SM, Rowe B, Kleanthaus H. Haemolytic Uraemic Syndromes in the British Isles 1985-88; Association with Verocytotoxin-Producing E coli. Arch. Dis. Child 1990; 65: 716-721
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
Proulx F, Sockett P. Prospective surveillance of Canadian children with the haemolytic uraemic syndrome. Pediatr Nephrol 2005;20:786-90
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Greece & Cyprus Unit: xhatzi@med.uth.gr
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Prestidge, C., & Wong, W. Ten years of pneumococcal‐associated haemolytic uraemic syndrome in New Zealand children. Journal of Paediatrics and Child Health, 2009; 45(12): 731-735.
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Epidemiology of haemolytic uremic syndrome in Swiss Children: preliminary results of a surveillance study. Abstract. 4th World Congress Foodborne Infections and Intoxications. Berlin, June 7-12, 1998
Schifferli A, von Vigier R, Fontana M, Spartà G, Schmid H, Bianchetti M, Rudin C and the Swiss Paediatric Surveillance Unit (SPSU). Hemolytic-uremic syndrome in Switzerland: a nationwide
surveillance 1997–2003. Eur J Pediatr (2010) 169:591–598
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Hirst WJ, Layton DM, Singh S, Mieli-Vergani G, Chessells JM, Pritchard J, et al. Haemophagocytic lymphohistiocytosis; an abnormal inherited immunophenotype in one family. Br. J. Haematol 1994; 88: 731-9
Haemorrhagic shock encephalopathy syndrome (HSES)
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Bacon CJ, Hall SM. Haemorrhagic Shock Encephalopathy Syndrome in the British Isles, Arch. Dis. Child 1992; 67: 985-993
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Head injury secondary to suspected child maltreatment (abuse or neglect)
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Bennett S, Grenier D, Medaglia A. The Canadian Paediatric Surveillance Program: A framework for the timely data collection on head injury secondary to child maltreatment. . Am J Prev Med 2008;34(4S):S140-2
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Aalberse JA, Dolman KM, Ramnath G, Pereira R, Davin JC. Henoch Schonlein purpura in kinderen: een epidemiologische studie betreffende de incidentie en het gebruik van diagnostische criteria door Nederlandse kinderartsen. Tijdschr Kindergeneeskd 2006;S1:10-11.
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Oettinger R, Brunnberg A, Gerner P, Wintermeyer P, Jenke A, Wirth S. Clinical features and biochemical data of Caucasian children at diagnosis of autoimmune hepatitis. J Autoimmun 2005; 24: 79-84
Hepatitis C virus (HCV) infection
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Raynes-Greenow, C, Polis S, Elliott E, Hardikar W, Kesson A, Kaldor J, et al. Childhood hepatitis C virus infection: An Australian national surveillance study of incident cases over five years. J Paediatr Child Health. 2015; 51(11):1115-1120.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Gibb DM, Neave PE, Tookey PA, Ramsay M, Harris H, Baglogan K, Goldberg D, Mieli-Vergani G, Kelly D.Active Surveilance of Hepatitis C Infection in the UK and Eire. Archives of Disease in Childhood 2000; 82: 286-291
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Hereditary periodic fever syndrome (FMF, HIDS, MA, TRAPS, CINCA, MWS FCAS)
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Lainka E, Bielak M, Lohse P, Timmann C, Stojanov S, von Kries R, Niehues T, Neudorf U. Familial Mediterranean Fever (FMF) in Germany: Epidemiological, clinical and genetic characteristics of a pediatric population. Eur J Pediatr 2012; 171 (12):1775-1785
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Levene MI, Wild J, Steer P. Higher multiple births and the modern management of infertility in Britain. For the British Association of Perinatal Medicine. Brit. Journ. Obst. and Gyn 1992; 99: 607-613
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Singh SJ, Croaker GDH, Manglick P, Wong CL, Athanasakos H, Elliott EJ et al. Hirschsprung's disease - Australian Paediatric Surveillance Unit's experience. Paediatric Surgery International 2003; 19:247-250
HIV infection, AIDS and perinatal exposure to HIV
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
McDonald AM, Zurynski YA, Wand HC, Giles ML, Elliott EJ, Ziegler JB, Kaldor JM. Perinatal exposure to HIV among children born in Australia, 1982-2006. Medical Journal of Australia 2009; 190(8):416-420.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Ades AE, Davison C, Holland FJ, Gibb DM, Hudson CN, Nicoll A, Goldberg D, Peckham C. Vertically transmitted HIV infection in the British Isles. Brit. Med. J 1993: 306: 1296-1299
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Dickson, N., Paul, C., Wilkinson, L., Voss, L., & Rowley, S. Estimates of HIV prevalence among pregnant women in New Zealand. New Zealand Public Health Report, 2002;9:17-19
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
How to measure the need for transition to adult services among young people with Attention Deficit Hyperactivity Disorder (ADHD): a comparison of surveillance versus case note review methods
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Eke H, Janssens A, Downs J, Lynn RM, Ani C, Ford T., BMC Med Res Methodol. 2019;19(1):179. Published 2019 Aug 20. doi:10.1186/s12874-019-0820-y
Hyperbilirubinaemia/Kernicterus
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Manning DJ, Todd P, Maxwell M, Platt MJ.Prospective surveillance study of severe hyperbilirubinaemia in the newborn in the UK and Ireland. Arch Dis Child. Fetal Neonatal Ed 2007; 92: F342-F346
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Sgro M, Campbell D, Shah V. Incidence and causes of severe neonatal hyperbilirubinemia in Canada. CMAJ 2006;175(6):587-90
Sgro M, Kandasamy S, Shah V, Ofner M, Campbell D. Severe neonatal hyperbilirubinemia decreased after the 2007 Canadian guidelines. J Pediatr 2016 Apr;171:43–7
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Zoubir SA, Arlettaz Mieth R, Berrut S, Roth-Kleiner M and the Swiss Paediatric Surveillance Unit (SPSU). Incidence of Severe Hyperbilirubinaemia in Switzerland: A Nationwide Population-based prospective Study. Arch Dis Child Fetal Neonat Ed 2011; 96(4): F310–11.
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Greer R, Walker R, Rogers M, Cotterill A and Paediatricians contributing to the Australian Paediatric Surveillance Unit. Hyperinsulinaemic hypoglycaemia of infancy in Australia. RACP Congress Melbourne, May 2007. Journal of Paediatrics and Child Health (in Press)
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Basatemur E, Sutcliffe A. Incidence of hypocalcemic seizures due to vitamin D deficiency in children in the United Kingdom and Ireland. J Clin Endocrinol Metab. 2015 Jan;100(1):E91-5. doi: 10.1210/jc.2014-2773.
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Matthews Y, Dean F, Lim MJ, et al Pseudotumor cerebri syndrome in childhood: incidence, clinical profile and risk factors in a national prospective population-based cohort study Archives of Disease in Childhood Published Online First: 29 March 2017. doi: 10.1136/archdischild-2016-312238
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Wong, W. Idiopathic nephrotic syndrome in New Zealand children, demographic, clinical features, initial management and outcome after twelve-month follow-up: Results of a three-year national surveillance study. Paediatrics and Child Health, 2007; 43: 337–341
Idiopathic thrombcytopenia/thrombocytopenic purpura
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Serrarens-Janssen VML, Steegers EAP, Bos A van den, Heijst AFJ van, Rodrigues Pereira R, Semmekrot BA. Experiences with alloimmune thombocytopenia in the Netherlands over a 2-year period. Acta Obstet Gynaecol Scand 2005;84:203.
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Sutor AH, Harms A, Kaufmehl K. Acute immune thrombocytopenia (ITP) in childhood: retrospective and prospective survey in Germany. Semin Thromb Hemost 2001;27(3):253-267
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Wilson, C., Kerruish, N., Wilcken, B., Wiltshire, E. & Webster, D. The failure to diagnose inborn errors of metabolism in New Zealand: the case for expanded newborn screening. New Zealand Medical Journal 2008; 120: U2727
Infantile and later-onset paediatric Pompe disease (glycogen storage disease)
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Infection of the CNS by ureaplasma species in the 1st year of life
Description
German Unit: silwedel_c@ukw.de, glaser_k@ukw.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Inflammatory bowel disease - chronic
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Zaag-Loonen HJvd, Casparie M, Taminiau AJM, Escher JC, Rodrigues Pereira R, Derkx BHF. The incidence of Pediatric Inflammatory Bowel Disease in the Netherlands: 1999-2001. J Pediatr Gasteroenterol Nutr 2004;38(3):302-8
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Yap, J., Wesley, A., Mouat, S., & Chin, S. Paediatric inflammatory bowel disease in New Zealand. New Zealand Medical Journal (Online), 2008; 121(1283):19-34.
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Sawczenko A, Sandhu B, Logan R, Jenkins H, Taylor CJ, Mian S, Lynn R. Prospective Survey of Childhood Inflammatory Bowel Disease in the British Isles. Lancet 2001;357:1095-6
Description
Australian Unit: schn-apsu@health.nsw.gov.au, http://www.apsu.org.au
Publication:
Li-Kim-Moy J, Dastouri F, Rashid H, Khandaker G, Kesson A, McCaskill, M, et al. Utility of early influenza diagnosis through point-of-care testing in children presenting to an emergency department. J Paediatr Child Health 2016; 52(4):422-429.
Noonan S, Zurynski YA, Currie BJ, McDonald M, Wheaton G, Nissen M, Carapetis JR. A national prospective surveillance study of acute rheumatic fever in Australian children. Pediatric Infectious Disease Journal. 2013; 32(1): e26-32.
Influenza-associated intensive care and deaths cases among children and adolescents
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Streng A, Grote V, Liese JG. Severe influenza cases in paediatric intensive care units in Germany during the pre-pandemic seasons 2005 to 2008. BMC Infect Dis 2011;11:233
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Hahn A, Michalak H, Begemann K, Preußner , Gessner M, Heinemeyer G, Gundert-Remy U. The BgVV-Study: Dangerous lamp oils. Documentation of lamp oil accidents in German Children's Hospitals. Clin Tox 2001;39 (3):307
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
A nationwide study on hospital admissions due to dehydration in exclusively breastfed infants in the Netherlands: Its incidence, clinical characteristics, treatment and outcome. Acta Paediatr 2009;98(5):807-11.
Description
German Unit: sascha.meyer@uks.eu, daniel.ebrahimifakhari@uks.eu, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Thyen U, Lanz K, Holterhus PM, Hiort O. Epidemiology and initial management of ambiguous genitalia in Germany. Hormone Research 2006;66(4):195-203
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Griese M, Haug M, Brasch F, Freihorst A, Lohse P, von Kriesw R, Zimmermann T, Hartl D. Incidence and Classification of Pediatric Diffuse Parenchymal Lung Diseases in Germany. Orphanet J Rare Dis 2009, 4:26 DOI: 10.1186/1750-1172-4-26
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Intussusception
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Buttery JP, Danchin MH, Lee KJ, Carlin J.B, McIntyre PB, Elliott EJ, Booy R, Bines JE, PAEDS/APSU Study Group. (). Intussusception following rotavirus vaccine administration: post-marketing surveillance in the National Immunization Program in Australia. Vaccine 2011; 29(16), 3061-3066.
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Neuner B, Mackensen S, Krümpel A, Manner D, Friefeld S, Nixdorf S, Frühwald M, Deveber G, Nowak-Göttl U. Health-related quality of life in children and adolescents with stroke, self-reports, and parent/proxies reports: Cross-sectional investigation. Ann Neurol 2011, Jan 24. DOI: 10.1002/ana.22381
Irish Unit: Sandra.Morgan@cuh.ie
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Samad L, Cortina-Borjab M, El Bashira H, et al. Intussusception incidence among infants in the UK and Republic of Ireland: A pre-rotavirus vaccine prospective surveillance study. Vaccine 31 (2013) 4098– 4102
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Cherihew L, Lamagni TL, Brocklehurst P, McGuire W. Invasive fungal infection in very low birthweight infants: national prospective surveillance study. Arch Dis Child Neo Ed 2006; 91: F188-192
Invasive Haemophilus influenzae infection
Description
Australian Unit: apsu@chwe.edu.au, www.apsu.org.au
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Kalies H, Grote V, Siedler A, Gröndahl B, Schmitt HJ, von Kries R. Effectiveness of hexavalent vaccines against invasive Haemophilus influenzae type b disease: Germany's experience after 5 years of licensure. Vaccine 2008;26:2545-2552
Invasive Haemophilus influenzae infection type b
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Schmitt HJ, von Kries R, Hassenpflug B, Hermann M, Siedler A, Niessing W, Clemens R, Weil J. Haemophilus influenzae typ b (Hib) disease: impact and effectivness of DTaP(-IPV)/Hib combination vaccines. Pediatr Infect Dis J 2001;20:767-774
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Booy R, Heath PT, Slack MPE, Begg, N, Moxon ER.Vaccine failures after primary immunisation with Haemophilus influenza type-b comjugate vaccine without booster. Lancet 1997; 349: 1197-202
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Invasive infections caused by beta-hemolytic streptococci (A, B, C, G, F)
Description
German Unit: Dresden@Paediatrische-Infektiologie.de, www.esped.uni-duesseldorf.de
Publication: -
Iron-deficiency anemia in infants and young children - severe
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Parkin PC, DeGroot J, Maguire JL, Birken CS, Zlotkin S. Severe iron-deficiency anaemia and feeding practices in young children. Public Health Nutr 2016;19(4):716–22
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Symmons DPM, Sills JA, Davis SM. The incidence of juvenile dermatomyositis: results from a nationwide study. Brit. Journ. Rheum 1995; 34; 732-736
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Dressler F, Frosch M, Mönkemöller K, Thon A, Weißbarth-Riedel E, Horneff G. Results of the German ESPED-recording of new patients with juvenile dermato-myositis (JDM). Klin Padiatr 2011; 223: 280-2
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Novakovic D, Cheng AT, Zurynski Y, Booy R, Walker PJ, Berkowitz R, Harrison H, Black R, Perry C, Vijayasekaran S, Wabnitz D. A prospective study of the incidence of juvenile-onset recurrent respiratory papillomatosis after implementation of a national HPV vaccination program. The Journal of infectious Diseases. 2018 Nov 9;217(2):208-12.
Kawasaki disease
Surveillance Units: Australian Unit, British Unit, Canadian Unit, German Unit, Netherlands Unit, New Zealand Unit, Portuguese Unit, Swiss Unit, Irish Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Royle JA, Williams K, Elliott E, Sholler G, Nolan T, Allen R, Isaacs D. Kawasaki disease in Australia, 1993-1995. Archives of Disease in Childhood 1998; 78:33-39
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Dhillon R, Newton L, Rudd P, Hall SM.Kawasaki Disease in the British Isles. A survey of management.Arch. Dis. Child 1995; 69: 631-638
Tulloh RMR, Mayon-White R, Harden A. et al. Kawasaki disease: a prospective population survey in the UK and Ireland from 2013 to 2015. Arch Dis Child 2018. Aug 13: 1-7
Canadian Unit: melaniel@cps.ch, www.cpsp.cps.ca
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Heaton, P., Wilson, N., Nicholson, R., Doran, J., Parsons, A. & Aiken, F. Kawasaki Disease in New Zealand. Journal of Paediatrics and Child Health 2006; 42: 184–190
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Jakob A, Whelan J, Kordecki M, Berner R, Stiller B, Arnold R, von Kries R, Neumann E, Roubinis N, Robert M, Grohmann J, Höhn R, Hufnagel M. Kawasaki disease in Germany – a prospective population-based study adjusted for underreporting. Pediatr Infect Dis J 2016;35:129-134.
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
Sgro M, Campbell DM, Kandasamy S, Shah V.. Incidence of chronic bilirubin encephalopathy in Canada, 2007-2008. Pediatrics 2012;130(4)
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Salotti J A, Nanduri V, Pearce MS , Parker L, Lynn R, Windebank K P. Incidence and clinical features of Langerhans cell histiocytosis in the UK and Ireland. Arch Dis Child 2009; 94: 376 – 380
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
Santschi M, Lemoine C, Cyr C. The spectrum of seat belt syndrome among Canadian children: Results of a two-year population surveillance. . Paediatr Child Health 2008;13(4):279-83
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Life threatening events and unexplained deaths in neonates on the first day of life
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Poets A, Steinfeldt R, Poets CF. Sudden deaths and severe apparent life-threa-tening events in term infants within 24 hours of birth. Pediatrics 2011;127:e869-73
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Altmann M, Fiebig L, Buda S, von Kries R, Dehnert M, Haas W. Unchanged Severity of Influenza A(H1N1)pdm09 Infection in Children during First Postpandemic Season. Emerg Infect Dis 2012;Nov;18(11):1755-1762
Listeriosis in neonates and infants
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
Swiss Unit: mirjam.maeusezahl@bag.admin.ch, www.spsu.ch
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Ladhani S , Garbash M, Whitty CJ et al. Prospective, national clinical and epidemiologic study on imported childhood malaria in the United Kingdom and the Republic of Ireland. Pediatr Infect Dis J. 2010 May; 29(5):434-8.
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Driessen GJ, Brabin B, Rodrigues Pereira R. "Imported malaria in children: a national surveillance in the Netherlands and a review of European studies". Eur J Public Health 2008;18:184-8.)
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Maguire HC, Begg NT, Handford SC. Meningoencephalitis associated with MMR vaccine. Communicable Disease Report 1991; 1 (6): R57-R59
Description
Australian Unit: schn-apsu@health.nsw.gov.au, http://www.apsu.org.au
Publication:
Young D, Bebbington A, de Klerk N, Bower C, Nagarajan L, Leonard H. The relationship between MECP2 mutation type and health status and service use trajectories over time in a Rett syndrome population. Research in autism spectrum disorders. 2011 Jan 1;5(1):442-9.
Medium Chain Acul CoA Dehyrogenase Deficiency (MCADD)
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Pollitt RJ, Leonard JV, Prospective surveillance study of medium-chain CoA dehydrogenase deficiency in the Inuted Kingdom, Arch. Dis. Child 1998; 79(2): 116-9
Leonard JV, Dezateux C. Newborn screening for medium chain acyl CoA dehydrogenase deficiency. Arch Dis Child 2009; 94(3): 235-8.
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Incidence of medium-chain acyl-CoA dehydrogenase deficiency in Canada using the Canadian Paediatric Surveillance Program: Role of newborn screening. Paediatr Child Health 2012;17(4):185-9
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Derks TGJ, Jakobs H, Gerding A, Niezen-Koning KE, Reijngoud DJ, Smit GPA. Deficiency of the fatty-acid oxidising enzyme medium-chain CoA dehydrogenase (MCAD) in an adult, detected during a neonatal screening programme. Ned Tijdschr Geneesk 2004;148(44):2185-90
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Holt DE, Halket S, de Louvois J, Harvey D. Neonatal meningitis in England and Wales: 10 years on, Arch Dis ChILd Fetal Neonatal Ed 2001; 84: f85-f89
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Methicillin-resistant Staphylococcus aureus in hospitalized children
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Johnson AP, Sharland M, Goodall C , Blackburn R et al. Enhanced surveillance of methicillin-resistant Staphylococcus aureus (MRSA) bacteraemia in children in the UK and Ireland. Arch Dis Child. 2009 Oct 11. DOI
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Leifso KR, Gravel D, Mounchili A, Kaldas S, Le Saux N. Clinical characteristics of pediatric patients hospitalized with methicillin-resistant Staphylococcus aureus in Canadian hospitals from 2008 to 2010. Can J Infect Dis Med Microbiol 2013;24(3):e53-6
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Montelukast and Neuropsychiatric Events
Surveillance Unit: Australian Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, http://www.apsu.org.au
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Reinhardt K, Weiß S, Rosenbauer J, Gärtner J, von Kries R. Multiple sclerosis in children and adolescents: incidence and clinical picture – new insights from the nationwide German surveillance (2009-2011): Eur J Neurol 2014; 21:654-9
Pohl D, Hennemuth I, von Kries R, Hanefeld F. Paediatric multiple sclerosis versus acute disseminated encephalomyelitis. Eur J Pediatr 2007;166(5):405-412
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Jureidini J, Shafer A, Donald T. Munchausen by proxy syndrome: not only pathological parenting but also problematic doctoring ? Medical Journal of Australia 2003; 178(3): 130-132
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
McClure RJ, Davis PM, Meadow SR, Silbert JR.The epidemiology of Munchausen Syndrome by Proxy, Non-accidental poisoning and Non-accidental suffocation. Arch. Dis. Child 1996;75: 57-61
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Reuss AM, Wiese-Posselt M, Weißmann B, Siedler A, Zuschneid I, an der Heiden M, Claus H, von Kries R, Haas WH. Incidence Rate of Nontuberculous Mycobacterial Disease in Immunocompetent Children: A Prospective Nationwide Surveillance Study in Germany. Pediatr Infect Dis J 2009;28: 642-644
(DOI: 10.1097/INF.0b013e3181978e8e )
Description
Swiss Unit: mirjam.maeusezahl@bag.admin.ch, www.spsu.ch
Publication:
Meyer Sauteur P, Moeller A, Relly C, Berger C, Plecko B, Nadal D; for the Swiss Paediatric Surveillance Unit (SPSU). Swiss national prospective Surveillance of paediatric Mycoplasma pneumoniae-associated encephalitis. Swiss Med Wkly, 2016; 146:w14222
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Handwerker G. Narkolepsie. Monatsschr Kinderh 2007;155:624-629
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Ihuoma E, Davies HD.Epidemiology and outcome of necrotizing fasciitis in children: An active surveillance study of the Canadian Paediatric Surveillance Program. J Pediatr 2007;151(7):79-84
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Netherlands Unite: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Serrarens-Janssen V.M.L, Steegers E.A.P, Bos A van den, Heijst A.F.J van, Rodrigues Pereira R, Semmekrot B.A. Meldingen van neonatale allo-immuun trombocytopenie (NAITP) in Nederland:resultaten van een inventarisatie via het Nederlands Signaleringscentrum Kindergeneeskunde. Tijdschr Kindergeneesk 2005(73); 6:221-5Serrarens-Janssen VML, Steegers EAP, Bos A van den, Heijst AFJ van, Rodrigues Pereira R, Semmekrot BA. Experiences with alloimmune thombocytopenia in the Netherlands over a 2-year period. Acta Obstet Gynaecol Scand 2005;84:203
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Ko DW, Zurynski Y, Gilbert GL, and the GBS Study Group. Group B streptococcal disease and genotypes in Australian infants. J Paediatr Child Health. 2015; 51(8):808-814.
Neonatal herpes simplex virus (HSV) infection
Surveillance Units: Australian Unit, Canadian Unit, German Unit, New Zealand Unit, Swiss Unit, British Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Jones CA, Raynes-Greenow C, Issacs D, on behalf of the Neonatal HSV Study Investigators and Contributors to the Australian Paediatric Surveillance Unit. Population-based surveillance of neonatal herpes simplex virus infection in Australia, 1997-2011. Clinical Infectious Diseases. 2014; 59(4):525-531.
Garland S, Jones CA, Herpes simplex virus in pregnancy. Australia and New Zealand Journal of Obstetrics and Gynaecology 2001(3): 108-114
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Tookey P, Peckham CS. Neonatal herpes simplex virus infection in the British Isles, Paediatric and Perinatal Epidemiology 1997; 10: 432-442
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Kropp RY, Wong T, Cormier L, Ringrose A, Burton S, Embree JE, Steben M. Neonatal herpes simplex virus infections in Canada: Results of a 3-year national prospective study. . Pediatrics 2006;117(6):1955-62.
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Pascual A, Moessinger A, Gerber S, Meylan P and the Swiss Paediatric Surveillance Unit (SPSU), Neonatal herpes simplex virus infections in Switzerland: resluts of a 6-year national prospective surveillance study. Clin. Microbiol Infect 2011; 17(12): 1907–10
Neonatal hyperbilirubinemia - severe
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Oddie SJ , Craven V, Deakin K et al. Severe neonatal hypernatraemia: a population based study. Arch Dis Child Fetal Neonatal Ed 2013 Sep;98(5):F384-7
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
McGillivray A, Polverino J, Badawi N, Evans N. Prospective surveillance of extreme neonatal hyperbilirubinemia in australia. The Journal of pediatrics. 2016 Jan 1;168:82-7.
Neonatal infections due to fungi (candida)
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Jackson R, Roberts EA. Identification of neonatal liver failure and perinatal hemochromatosis in Canada. Paediatr Child Health 2001;6(5):248-50
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Hünseler C, von Kries R, Roth B. Decrease of the incidence of renin-angiotensin-system inhibitor induced oligohydramnios-sequence in Germany in 2011. Klin Padiatr. 2014 Apr; 226(2):59-61. DOI: 10.1055/s-0033-1363267. Epub 2014 Mar 14.
Neonatal respiratory failure that requires additional critical care therapy - Severe
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Patry C, Hien S, Demirakca S, Reinhard J, Majorek M, Brade J, Schaible T. Adjunctive therapies for treament of severe respiratory failure in newborns. Klin Padiatr 2015:227:28-32
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Neuner B, Mackensen S, Krümpel A, Manner D, Friefeld S, Nixdorf S, Frühwald M, Deveber G, Nowak-Göttl U. Health-related quality of life in children and adolescents with stroke, self-reports, and parent/proxies reports: Cross-sectional investigation. Ann Neurol 2011, Jan 24. DOI: 10.1002/ana.22381
Nephrotic syndrome/steriod resistant nephrotic syndrome
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Poretti A, Anheier T, Zimmermann R, Boltshauser E and the Swiss Paediatric Surveillance Unit (SPSU). Neural tube defects in Switzerland from 2001 to 2007: are periconceptual folic acid recommendations being followed? Swiss Medical Weekly 2008: 138(41–42): 608–13.
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Villano DJ, Kornberg AJ, Lamont P, North KN, Rowe P, Sinclair K, Ryan MM. APSU study of neuromuscular disorders in childhood. Journal of Paediatrics and Child Health 2008; 44(9): A18.
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Blyth CC, Palasanthiran P, Best E, Jones C, Daley AJ, Burgner D, Nourse C, Goldwater PN, Henry G. Non tuberculosis mycobacterial infection: A national surveillance study. Journal of Paediatrics and Child Health 42[11], A11. 2006
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Reuss A, Drzymala S, Hauer B, von Kries R, Haas W. Treatment outcome in children with nontuberculous mycobacterial. Int J Mycobacteriol 2017;6:76-82.
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Nutritional rickets under 16 years: UK surveillance results
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Julies P, Lynn RM, Pall K, et al., Arch Dis Child. 2020;105(6):587-592. doi:10.1136/archdischild-2019-317934
Description
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Hira Sing RA, Renders C, Wouwe van K. Preventie van overgewicht en obesitas. Lacta Magazine 2004;1:4-7
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: kerstin.gruendler@med.uni-tuebingen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Schöber J G, Neumayer S, Meisner H, von Kries R. Prävalenz und Inzidenz des Undine-Syndroms in Deutschland. Monatsschr Kinderh 1994;142:S32
Ophthalmia neonatorum caused by N. gonorrhoeae or C. trachomatis
Surveillance Unit:
Optic nerve hypoplasia and septo-optic dysplasia
Surveillance Unit: Canadian Unit
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Hoffmann GF, von Kries R, Klose D, Lindner M, Schulze A, Muntau AC, Röschinger W, Liebl B, Mayatepek E, Roscher AA. Frequencies of inherited organic acidurias and disorders of mitochondrial fatty acid transport and oxidation in Germany. Eur J Pediatr 2004;163:76-80
Outcome of resuscitated term babies with no heart rate detected at 10 Minutes age
Surveillance Unit: British Unit
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
VanderPluym J, Vajsar J, Jacob FD, Mah JK, Grenier D, Kolski H . Clinical characteristics of paediatric myasthenia: A surveillance study. – Pediatrics 2013;132(4)
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication:
Mushtaq F, Jenkins H, Hutton K, Cosgrove M, Davies I. Epidemiology and management of acute pancreatitis in children. W Paed J 2014;40; 35-38
Pertussis
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Herzig P, Hartmann C, Fischer D, Weil J, von Kries R, Giani G, Schroten H, Wirsing von König CH. Pertussis complications in Germany – 3 years of hospital-based surveillance during the introduction of acellular vaccines. Infection 1998;26 Nr. 4:227-231
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Somerville, R., Grant, C., Grimwood, K., Murdoch, D., Graham, D., Jackson, P., Meates-Dennis, M., Nicholson, R. & Purvis, D. Infants hospitalised with pertussis: Estimating the true disease burden. Journal of Paediatrics and Child Health 2008; 43:617-622
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Heininger U, Weibel D, Richard JL. Prospective nationwide surveillance of hospitalizations due to pertussis in children, 2006–2010. Pediatr Infect Dis J. 2014 Feb;33(2):147-51. doi: 10.1097/01.inf.0000435503.44620.74
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Juretzko P, von Kries R, Hermann M, Wirsing von König CH, Weil J, Giani G. Effectiveness of acellular pertussis vaccine assessed by an active hospital-based surveillance in Germany. Clin Infect Dis 2002;35:162-167
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Elliott EJ, McIntyre P, Ridley G, Morris A, Massie J, McEniery J et al. A national study of infants hospitalised with Pertussis in the Acellular Vaccine Era. Paediatric Infectious Disease Journal 2004; 28: 246-52
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Tibussek D, Distelmaier F, von Kries R, Mayatepek E. Pseudotumor cerebri in childhood and adolescence – results of a German-wide ESPED-survey. Klin Padiatr 2013 Mar;225(2):81-5. DOI: 10.1055/s-0033-1333757. Epub 2013 Mar 22
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Vatlach S, Maas C, Poets CF. Birth prevalence and initial treatment of Robin sequence in Germany: a prospective epidemiologic study. Orphanet Journal of rare diseases 2014; 9(1):9.
Pleural empyema and complicated parapneumonic empyema in children and adolescents < 18 years
Description
New Zealand: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Rix-Trott K, Byrnes C, Twiss J, Matsas R, Hamill J, Evans S, Mahon C, Williamson D, Dickson N, Walls T, Voss, L, and Best, E. Nationwide surveillance of paediatric empyema in New Zealand 2014–2016. Presentation at Australasian Society of Infectious Diseases Annual Scientific Meeting, Leura NSW, March 2017
Pneumococcal meningitis/sepsis
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Van der Linden M, Weiß S, Falkenhorst G, Siedler A, Imöhl M, von Kries R. Four Years of universal Pneumococcal Conjugate Infant Vaccination in Germany: Impact on Incidence of invasive Pneumococcal Disease and Serotype Distribution in Children. Vaccine 2012;30 (40):5880-5885
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Safar, A., Lennon, D., Stewart, J., Trenholme, A., Drinkovic, D., Peat, B., & Voss, L. (2011). Invasive group A streptococcal infection and vaccine implications, Auckland, New Zealand. Emerging Infectious Diseases, 2011; 17(6): 983-9.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Smith A, Egan J, Ridley G, Haan E, Montgomery P, Williams K et al. Birth Prevalence of Prader-Willi Syndrome in Australia. Archives of Disease in Childhood 2003; 88: 263-264
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Pregnancy in adolesence
Surveillance Unit: Latvian Unit
Description
Latvian Unit: -
Publication: -
Progressive Intellectual and neurological deterioration
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Verity C, Nicoll A, Will R, Devereux G, Silitano L. Variant Creutzfeldt disease in UK children: a national surveillance study., Lancet 2000; 356:1224-7
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
Keene DL, Sutcliffe T, Harman P, Grenier D. Surveillance for progressive intellectual and neurological deterioration in the Canadian paediatric population. Can J Neurol Sci 2004;31(2):220-4.
Proven Neonatal bacterial or fungal infection in the first week of life
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Darlow, B. A., Voss, L., Lennon, D. R., & Grimwood, K. Early‐onset neonatal group B streptococcus sepsis following national risk‐based prevention guidelines. Australian and New Zealand Journal of Obstetrics and Gynaecology, 2017; 56(1): 69-74.
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Baxter P. Epidemiology of pyridoxine dependent and pyridoxine responsive seizures in the UK. Arch Dis Child 1999; 81: No5, 431-433
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Ruggles R et al. Surveillance of elevated lead levls in children (SLiC) - A BPSU analysis- Public Health England, November 2018 online
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz
Publication:
Dickson, N., Kara, T. & Tuohy, P. Rapid national survey of renal stones in New Zealand infants. Journal of Paediatrics and Child Health 2009; 45(11): 633-635.
Respiratory syncytial virus (RSV) infection in paediatric transplant patients
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Robinson JL, Grenier D, MacLusky I, Allen UD. Respiratory syncytial virus infections in pediatric transplant recipients: A Canadian Paediatric Surveillance Program study. Pediatr Transplant 2015;19(6):659–62
Description
Latvian Unit: -
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Description
Australien Unite: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Fehr S, Bebbington A, Nassar N, Downs J, Ronen GM, De Klerk N, & H, L. Trends in the diagnosis of Rett Syndrome in Australia. Pediatric Research,2011; 70(3), 313-319.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Kerr AM - Roosendaal JJ (ed.). Rett Syndrome: British Longitudinal Study (1982-1990) and 1990 Survey. In Mental Retardation and Medical Care. Uitgeverij Kerckebosch, Zeist
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Newton L, Hall SM. Reye's Syndrome in the British Isles: report for 1990/91 and the first decade of surveillance. Communicable Disease Report 1993; Vol 3. Review No. 1: R11-16
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Koletzko B, von Kries R, Koletzko S. Reye-Syndrom bei Kindern in Deutschland. Monatsschr Kinderh 1994;142:S30
Description
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
Baker JM, Campbell DM, Bhutani VK, Sgro M. Rh sensitization in Canada is not obsolete. Paediatr Child Health 2017;22(4):238–9
RSV disease requiring intubation and artificial ventilation
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Rump D, Ihorst G, Forster J. Todesfälle durch Respiratory Syncytial Virus (RSV)-Infektion: Nosokomiale Übertragung und Herzfehler sind wichtige Risikofaktoren. Monatsschr Kinderh 2001;Suppl. 2:S130
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Prospective population –based study of RSV-related intermediate care and intensive care unit admissions in Switzerland over a 4-year period (2001-2005). Infection 2009;37:109-16.
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Herrick A, Ennis H, Bhushan M, Silman A, Baildam E. Incidence of childhood linear scleroderma and systemic sclerosis in the UK and Ireland. Arthritis Care & Research 2010; 62 (2): 213–218
Seat Belt Injuries (SSI) - Serious
Description
Austratlian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Zurynski Y, Bliston L, Elliott EJ. Booster seat use by children aged 4-11 years: evidence of the need to revise current Australasian standards to accomodate overweight children. Medical Journal of Australia 2008; 189(3): 183. (Letter).
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication: -
Latvian Unit: -
Publication: -
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Serious and lif-threatening events associated with canabis use for non-medical (recreational)
Serious and life-threatening events associated with non-medical (recreational) cannabis use in Canadian children and youth
Description
German Unit: christian.dohna-schwake@uk-essen.de, nora.bruns@uk-essen.de, www.esped.uni-duesseldorf.de
Publication: -
Severe vaping-related illness and injury
Surveillance Unit: Canadian Unit
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Fanconi M, Lips U. Children University Hospital Zurich, Child Protection Group. Shaken baby syndrome in Switzerland: results of a prospective follow-up study, 2002–2007. Eur J Pediatr 2010; 169: 1023–8.
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Nowaczyk MJM, Waye JS, Zeesman S, Douketis JD. Incidence of Smith-Lemli-Opitz syndrome in Canada: Results of three-year population surveillance. J Pediatr 2004;145(4):530-5
Description
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Nowak-Göttl U, Sträter R, Heinicke A, Junker R, Koch HG, Schuierer G, Eckardstein A. Lipoprotein (a) and Genetic Polymorphism of Clotting Factor V, Prothrombin and Methylenetetrahydrofolate Reductase are risk factors of spontanous ischemic stroke in childhood. Blood 1999;94 Nr. 11 (December 1):3678-3682
Irish Unit: robert.cunney@hse.ie
Publication: -
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
Klemme M, Gerstl L, Weinberger R, Olivieri M, Flemmer A, von Kries R, Felderhoff-Müser U, Dzietko M. Neonatal arterial ischemic stroke – a hospital based active Surveillance Study in Germany. Klin Padiatr 2017;229:142-146.
Subacute sclerosing panencephalitis (SSPE)
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Campbell C, Levin S, Humphreys P, Walop W, Brannan R.. Subacute sclerosing panencephalitis: Results of the Canadian Paediatric Surveillance Program and review of the literature. BMC Pediatrics 2005;5:47
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Miller C, Farrington CP; Harbert K. Epidemiology of subacute sclerosing panencephalitis in England and Wales 1970-1989. Int. Journ. Epid 1992; 21: 998-1006
Miller C, Andrews N, Rush M, Munro H, Jin L, Miller E. The epidemiology of subacute sclerosing panencephalitis in England and Wales 1990-2002. Arch Dis Child 2004; 89 (12): 1145-8
Subdural haematoma and effusion in children
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
CJ Hobbs, A Childs, J Wynne, J Livingston, A Seal. Subdural haematoma and effusion in infancy: An epidemiological study. Arch Dis Child 2005;90; 952-955
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication: -
Sudden unexpected death in epilepsy (SUDEP)
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: -
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Lutz TL, Elliott EJ, Jeffery HE. Sudden unexplained early neonatal death or collapse: a national surveillance study. Pediatr Res. 2016; 80(4):493-498.
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Becher JC. Arch Dis Child Fetal Neonatal Ed 2012;97:F30−F34. Unexpected collapse in apparently healthy newborns – a prospective national study of a missing cohort of neonatal deaths and near-death events
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Mackie FE, Kainer G, Adib N, Boros C, Elliott EJ, Fahy R, et al. The national incidence and clinical picture of SLE in children in Australia - a report from the Australian Paediatric Surveillance Unit. Lupus 2015 ;24(1):66-73.
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication: -
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Nürnberger W, von Kries R, Böhm O, Göbel U. Systemic meningococcal infection: Which children may benefit from adjuvant haemostatic therapy? Results from a observational study. Eur J Pediatr 1999;158 [Suppl. 3]:S192-S196
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Bökenkamp A, von Kries R, Nowak-Göttl U, Göbel U, Hoyer PF. Neonatal renal venous thrombosis in Germany between 1992 and 1994: epidemiology, treatment and outcome. Eur J Pediatr 2000;159:44-48
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Williamson S, . Greene S A. Incidence of thyrotoxicosis in childhood: a national population based study in the UK and Ireland. Clinical Endocrinology. 2010; 72(3): 358- 363
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Brodehl J, Noack R et.al. Postexpositionelle FSME-Immunglobulingabe im Kindesalter nicht mehr zu empfehlen. Monatsschr Kinderh 1997;145:416-417
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Tick-borne encephalitis in Swiss children 2000-2004. Paediatric Infectious Disease Journal 2008; 27: 1–3
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Adalat S, T Dawson, Hackett SJ, et al. Toxic shock syndrome surveillance in UK children. Arch Dis Child 2014 May 1. doi: 10.1136/archdischild-2013-304741. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/24790135
Description
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Gauvin F, Robillard P, Hume H, Grenier D, Whyte R, Webert KE, Fergusson D, Lau W, Froese N, Delage G. Transfusion-related acute lung injury in the Canadian paediatric population. Paediatr Child Health 2012;17(5):235-9
Transient myeloproliferative syndrome in neonates with Down-Syndrome
Description
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Diekamp S, Creutzig U, Reinhardt D, Baumann-Köhler M. Transitorisch myeloproliferatives Syndrom bei Neugeborenen mit Down-Syndrom: Überblick und Analyse von 115 Patienten aus den AML-BMF-Studien und der ESPED-Studie. Monatsschr Kinderheilkd 2004, Online 24.09.2004
Transition between child and adult services for young people with attention-deficit hyperactivity disorder (ADHD): findings from a British national surveillance study
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication: Eke H, Ford T, Newlove-Delgado T, et al., Br J Psychiatry. 2019;1-7. doi:10.1192/bjp.2019.131
Travel-related illnesses in paediatric travellers who visit friends and relatives abroad
Tuberculosis/atypical tuberculosis infection
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
SS Teo SS , Riordan A, Alfaham M, Clark J, Evans MR, Sharland M, Novelli V, Watson JM, Sonnenberg P, Hayward A, Moore-Gillon J , Shingadia D for the British Paediatric Surveillance Unit Childhood Tuberculosis Study Group. Tuberculosis in the United Kingdom and Republic of Ireland. Arch Dis Child 2009; 94: 263 - 267
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication: -
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Haverkamp M, Arend SM, Lindeboom JA, Hartwig NG, Dissel van JT. Nontuberculous Mycobacterial infection in children: a 2-year prospective surveillance study in The Netherlands. Clin Infect Dis 2004;39:450-6
Swiss Unit: mirjam.maeusezahl@bag.admin.ch, www.spsu.ch
Publication: -
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication:
B Fathoala B , MR Evans MR, IA Campbell IA , Sastry J, Alfaham M. Active Surveillance for tuberculosis in Wales: 1996-2003. . Arch of Disease in Child 2006;91,900-904
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Unexpected sudden infant death and severe apparent life-threatening events in the early postnatal period
Description
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Summar ML, Koelker S, Freedenberg D, Le Mons C, Häberle J, Lee HS, Kirmse G. The incidence of urea cycle disorders. Mol Genet Metab 2013; 110: 179–80
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Peadon E, Burgner D, Nissen M et al. Case for varicella surveillance in Australia. Journal of Paediatrics and Child Health 2006; 42: 663-664
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Khandaker G, Marshall H, Peadon E, Zurynski Y, Burgner D, Buttery J, Gold M, Nissen M, Elliott EJ, Burgess M, Booy R. Congenital and neonatal varicella: impact of the national varicella vaccination programme in Australia. Archives of disease in childhood. 2011 May 1;96(5):453-6.
Varicella - severe complications
Surveillance Units: Australian Unit, British Unit, German Unit, Netherlands Unit, Portuguese Unit, New Zealand Unit, Swiss Unit, Irish Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Cameron C et al. Severe complications of chickenpox in hospitalised children in the UK and Ireland. Arch Dis Child. Dec;92(12):1062-6.
German Unit: prof.von.kries@gmx.de, www.esped.uni-duesseldorf.de
Publication:
Ziebold Ch, von Kries R, Lang R, Weigl J, Schmitt HJ. Severe complications of Varicella in previously healthy children in Germany: a 1-year survey. Pediatrics 2001;108(5):79-84
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication: -
Portuguese Unit: uvp-spp@ptnetbiz.pt
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Wen, S. C. H., Best, E., Walls, T., Dickson, N., McCay, H., & Wilson, E. Prospective surveillance of hospitalisations associated with varicella in New Zealand children. Journal of Paediatrics and Child Health, 2015; 51(11): 1078-1083.
Swiss Unit: spsu@bag.admin.ch, www.spsu.ch
Publication:
Bonhoeffer J, Baer G, Muehleisen B et al. Prospective surveillance of hospitalisations associated with varicella-zoster virus infections in children and adolescents. Eur J Pediatr 2005; 164: 366–70.
Irish Unit: robert.cunney@hse.ie
Publication: -
Varicella-Zoster Virus (VZV) associated hospitalisations (incl. post infectious complications)
Surveillance Unit: Swiss Unit
Description
Swiss Unit: spsu@bag.admin.ch, https://www.spsu.ch/en/docs/currentstudies
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -
Description
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
Rahi J S, Cable N, on behlaf of the British Childhood Visual Impairment Study Group (BCVISG). Severe visual impairment and blindness in children in the UK. Lancet 2003; 362: 1359-1365
Vitamin D deficiency (rickets)
Description
Australian Unit: schn-apsu@health.nsw.gov.au, www.apsu.org.au
Publication:
Munns C, Zacharin MR, Rodda CP et al. Prevention and treatment of infant and childhood Vitamin D deficiency in Australia and New Zealand: a consensus statement. Medical Journal of Australia 2006; 185: 268-272
Canadian Unit: cpsp@cps.ca, www.cpsp.cps.ca
Publication:
Ward LM, Gaboury I, Ladhani M, Zlotkin S.Vitamin D-deficiency rickets among children in Canada. CMAJ 2007;177(7):161-6
Welsh Unit: heather.oconnell@wales.nhs.uk, www.welshpaediatrics.org.uk/wpsu
Publication: -
Irish Unit: robert.cunney@hse.ie
Publication: -
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Wheeler, B. J., Dickson, N. P., Houghton, L. A., Ward, L. M., & Taylor, B. J. Incidence and characteristics of vitamin D deficiency rickets in New Zealand children: a New Zealand Paediatric Surveillance Unit study. Australian and New Zealand Journal of Public Health, 2015; 39(4):380-383.
Vitamine K deficiency bleeding (VKDB)
Surveillance Units: Australian Unit, British Unit, Canadian Unit, German Unit, Netherland Unit, New Zealand Unit, Swiss Unit
Description
Australian Unit: schn-apsu@health.nsw.gov.au, http://www.apsu.org.au
Publication: -
British Unit: bpsu@rcpch.ac.uk, www.rcpch.ac.uk/work-we-do/bpsu
Publication:
McNinch AW, Tripp J. Haemorrhagic Disease of the Newborn in the British Isles: a two year prospective study. Brit. Med. J 1991; 303: 1105-1109
Tripp J, Cornelissen M, Loughnan P, McNinch A, Schubiger G, von Kries R., Suggested protocol for the reporting of prosepective studies of vitamin k deficeincy bleeding (previously called Haemorrhagic disease of the newborn)., In vitamin K in infancy. Ed
Busfield A, et al. Vitamin K deficiency bleeding after NICE guidance and withdrawal of Konakion Neonatal: British Paediatric Surveillance Unit study, 2006–2008. Arch Dis Child 2013;98:41–47
McNinch A, Busfield A, Tripp J, Vitamin K deficiency bleeding in Great Britain and Ireland: British Paediatric Surveillance Unit Surveys, 1993-94 and 2001-02. Arch Dis Child 2007; 92: 759-766
Canadian Unit: melaniel@cps.ca, www.cpsp.cps.ca
Publication:
McMillan DD, Grenier D, Medaglia A Canadian Paediatric Surveillance Program confirms low incidence of haemorrhagic disease of the newborn in Canada. . Paediatr Child Health 2004;9(4):235-8
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication:
von Kries R, Göbel U. Oral vitamin K prophylaxis and late haemorrhagic disease of the newborn. Lancet 1994;343:352
Netherlands Unit: nsck@nvk.nl / klein@nvk.nl, www.nvk.nl/onderzoek/nsck
Publication:
Ijland MM, Pereira RR, Cornelissen EA. Incidence of late vitamin K deficiency bleeding in newborns in the Netherlands in 2005: evaluation of the current guideline. Eur J Pediatr 2008;167(2):165-9
New Zealand Unit: nzpsu@otago.ac.nz, www.otago.ac.nz/nzpsu
Publication:
Darlow BA, Phillips AA, Dickson NP. New Zealand surveillance of neonatal vitamin K deficiency bleeding (VKDB): 1998-2008. J Paediatr Child Health. 2011;47(7):460-4.
Swiss Unit: mirjam.maeusezahl@bag.admin.ch, www.spsu.ch
Publication:
Schubiger G, Berger TM, Weber R, Bänziger O, Laubscher B for the Swiss Paediatric Surveillance Unit (SPSU). Prevention of vitamin K deficiency bleeding with oral mixed micellar phylloquinone: results of a 6-year surveillance in Switzerland. Eur J Pediatr 2003; 162: 885-8
Laubscher B, Bänziger O, Schubiger G. Warum donner den Säuglingen eine 3e Dosis Vitamin K?. Schweiz Med Forum 2004; 4: 1143–4.
surveillance 1997–
Volvulus without malrotation in very low birth weight infants (<1500g)
Description
German Unit: ruediger.kries@med.uni-muenchen.de, www.esped.uni-duesseldorf.de
Publication: -