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9th INoPSU Scientific and Executive Committee Meeting, Vancouver, Canada14-Oct-2016

On August 16, 2016 INoPSU held its 9th Scientific and Executive Committee meeting at .. read more

BPSU 30 Year Anniversary! 05-Jun-2015

Congratulations to the BPSU on their 30th Anniversary For more on this story please cl.. read more

Launch of INOPSU 15 Year Report24-Aug-2013

The report "15 Years of International Research into Rare Childhood Diseases" will b.. read more

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Studies

Joint collaborative studies, as listed in below are seen as an important method of advancing the knowledge of uncommon childhood disorders around the world. There are definite challenges. However, having an opportunity to meet colleagues and discuss practicalities and difficulties provides the stimulus to forge ahead.